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Risk factors and outcomes of cardiovascular disease readmission within the first year after dialysis in peritoneal dialysis patients.

Jianbo Li, Naya Huang, Zhong Zhong, Pema Joe, Dan Wang, Zhen Ai, Lisha Wu, Lanping Jiang, Fengxian Huang,

<h4>Background</h4>In the first year of dialysis, patients are vulnerable to cardiovascular disease (CVD) hospitalization, but knowledge regarding the risk factors and long-term outcomes of cardiovascular readmission within the first year after dialysis in incident continuous ambulatory peritoneal dialysis (CAPD) patients is limited.<h4>Methods</h4>This retrospective cohort study was conducted in incident CAPD ... Read more >>

Ren Fail (Renal failure)
[2021, 43(1):159-167]

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Admission hyperglycaemia as a predictor of mortality in patients hospitalized with COVID-19 regardless of diabetes status: data from the Spanish SEMI-COVID-19 Registry.

Francisco Javier Carrasco-Sánchez, Mª Dolores López-Carmona, Francisco Javier Martínez-Marcos, Luis M Pérez-Belmonte, Alicia Hidalgo-Jiménez, Verónica Buonaiuto, Carmen Suárez Fernández, Santiago Jesús Freire Castro, Davide Luordo, Paula Maria Pesqueira Fontan, Julio César Blázquez Encinar, Jeffrey Oskar Magallanes Gamboa, Andrés de la Peña Fernández, José David Torres Peña, Joaquim Fernández Solà, Jose Javier Napal Lecumberri, Francisco Amorós Martínez, María Esther Guisado Espartero, Carlos Jorge Ripper, Raquel Gómez Méndez, Natalia Vicente López, Berta Román Bernal, María Gloria Rojano Rivero, José Manuel Ramos Rincón, Ricardo Gómez Huelgas, ,

<h4>Background</h4>Hyperglycaemia has emerged as an important risk factor for death in coronavirus disease 2019 (COVID-19). The aim of this study was to evaluate the association between blood glucose (BG) levels and in-hospital mortality in non-critically patients hospitalized with COVID-19.<h4>Methods</h4>This is a retrospective multi-centre study involving patients hospitalized in Spain. Patients ... Read more >>

Ann Med (Annals of medicine)
[2021, 53(1):103-116]

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Risk factors for calciphylaxis in Chinese hemodialysis patients: a matched case-control study.

Yuqiu Liu, Xiaoliang Zhang, Xiaotong Xie, Xin Yang, Hong Liu, Rining Tang, Bicheng Liu,

<h4>Introduction</h4>Calciphylaxis is a rare but potentially fatal disease commonly occurred in dialysis patients. Despite some previous studies on risk factors for calciphylaxis, there is still a lack of data from Chinese population.<h4>Methods</h4>The retrospective matched case-control study about calciphylaxis was performed in Zhongda Hospital affiliated to Southeast University. The case group ... Read more >>

Ren Fail (Renal failure)
[2021, 43(1):406-416]

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Assessment of structural brain changes in patients with type 2 diabetes mellitus using the MRI-based brain atrophy and lesion index.

Heng Zhao, Fang Wang, Guang-Hua Luo, Hao Lei, Fei Peng, Qiu-Ping Ren, Wei Chen, Yan-Fang Wu, Li-Chun Yin, Jin-Cai Liu, Shi-Nong Pan,

Patients with type 2 diabetes mellitus (T2DM) often have cognitive impairment and structural brain abnormalities. The magnetic resonance imaging (MRI)-based brain atrophy and lesion index can be used to evaluate common brain changes and their correlation with cognitive function, and can therefore also be used to reflect whole-brain structural changes ... Read more >>

Neural Regen Res (Neural regeneration research)
[2022, 17(3):618-624]

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Risk profile, antithrombotic treatment and clinical outcomes of patients in Nordic countries with atrial fibrillation - results from the GARFIELD-AF registry.

Marita Knudsen Pope, Dan Atar, Arne Svilaas, Torstein Hole, Jørn Dalsgaard Nielsen, Ulrik Hintze, Milita Crisby, Pekka Raatikainen, K E Juhani Airaksinen, Saverio Virdone, Karen Pieper, Gloria Kayani, Jean-Yves Le Heuzey, Jan Steffel, Janina Stepinska, Jean-Pierre Bassand, A John Camm, ,

<h4>Aims</h4>The objective was to evaluate the clinical characteristics, management and two-year outcomes of patients with newly diagnosed non-valvular atrial fibrillation at risk for stroke in Nordic countries.<h4>Methods</h4>We examined the baseline characteristics, antithrombotic treatment, and two-year clinical outcomes of patients from four Nordic countries.<h4>Results</h4>A total of 52,080 patients were enrolled in ... Read more >>

Ann Med (Annals of medicine)
[2021, 53(1):485-494]

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Adherence to oral anticoagulation in ischemic stroke patients with atrial fibrillation.

Paula Tiili, Ioannis Leventis, Janne Kinnunen, Ida Svedjebäck, Mika Lehto, Efstathia Karagkiozi, Dimitrios Sagris, George Ntaios, Jukka Putaala,

<h4>Background</h4>Non-vitamin K antagonist oral anticoagulants (NOAC) have superior safety and comparable efficacy profile compared to vitamin-K antagonists (VKAs), with more convenient dosing schemes. However, issues with adherence to the NOACs remain unsolved.<h4>Aims</h4>We sought to investigate the adherence to oral anticoagulation (OAC) and baseline factors associated with poor adherence after ischaemic ... Read more >>

Ann Med (Annals of medicine)
[2021, 53(1):1613-1620]

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Long-term outcomes after coronary artery bypass surgery in patients with rheumatoid arthritis.

Markus Malmberg, Antti Palomäki, Jussi O T Sipilä, Päivi Rautava, Jarmo Gunn, Ville Kytö,

<h4>Objective</h4>To investigate the long-term outcomes of coronary artery bypass grafting surgery (CABG) in patients with rheumatoid arthritis (RA).<h4>Methods</h4>Patients with RA (<i>n</i> = 378) were retrospectively compared to patients without RA (<i>n</i> = 7560), all treated with CABG in a multicentre, population-based cohort register study in Finland. The outcomes were studied with propensity score-matching adjustment ... Read more >>

Ann Med (Annals of medicine)
[2021, 53(1):1512-1519]

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Ethnic differences in acute promyelocytic leukaemia between New Zealand Polynesian and European patients.

Chris Varghese, Valery Yizhuo Liu, Tracey Immanuel, Nicole Chien, Taryn Green, George Chan, Edward Theakston, Maggie Kalev-Zylinska,

Ethnic differences in haematologic malignancies remain poorly elucidated, hence research in this area is important. This was a retrospective study into potential ethnic disparity in the presentation and outcomes of acute promyelocytic leukaemia (APL) between New Zealand (NZ) Polynesian and European patients. Data were analysed for patients treated at Auckland ... Read more >>

Hematology (Hematology (Amsterdam, Netherlands))
[2021, 26(1):215-224]

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What intensive care registries can teach us about outcomes.

Abi Beane, Jorge I F Salluh, Rashan Haniffa,

<h4>Purpose of review</h4>Critical care registries are synonymous with measurement of outcomes following critical illness. Their ability to provide longitudinal data to enable benchmarking of outcomes for comparison within units over time, and between units, both regionally and nationally is a key part of the evaluation of quality of care and ... Read more >>

Curr Opin Crit Care (Current opinion in critical care)
[2021, 27(5):537-543]

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Human prion disease surveillance in Spain, 1993-2018: an overview.

Jesús De Pedro-Cuesta, Javier Almazán-Isla, Laura Tejedor-Romero, María Ruiz-Tovar, Fuencisla Avellanal, Alberto Rábano, Miguel Calero, Fernando J García López, ,

In Spain, human transmissible spongiform encephalopathies (TSEs) have been undergoing continuous surveillance for over 25 years. In 1995, the system was launched as an EU Concerted Action, with EU surveillance network procedures being incorporated from 2002 onwards. The aim of this report was to describe performance and outcomes of this surveillance ... Read more >>

Prion (Prion)
[2021, 15(1):94-106]

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Evaluating red blood cell distribution width from community blood tests as a predictor of hospitalization and mortality in adults with SARS-CoV-2: a cohort study.

Tamar Banon, Joshua Wortsman, Shay Ben Moshe, Sivan Gazit, Asaf Peretz, Amir Ben Tov, Gabriel Chodick, Galit Perez, Tal Patalon,

<h4>Background</h4>Red blood cell distribution width (RDW) has been assessed during COVID-19 patient hospitalization, however, further research should be done to evaluate RDW from routine community blood tests, before infection, as a risk factor for COVID-19 related hospitalization and mortality.<h4>Patients and methods</h4>RDW was measured as a predictor along with age, sex, ... Read more >>

Ann Med (Annals of medicine)
[2021, 53(1):1410-1418]

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Risk of thyroid as a first or second primary cancer. A population-based study in Italy, 1998-2012.

Emanuele Crocetti, Veronica Mattioli, Carlotta Buzzoni, Silvia Franceschi, Diego Serraino, Salvatore Vaccarella, Stefano Ferretti, Susanna Busco, Ugo Fedeli, Massimo Varvarà, Fabio Falcini, Manuel Zorzi, Giuliano Carrozzi, Walter Mazzucco, Cinzia Gasparotti, Silvia Iacovacci, Federica Toffolutti, Rossella Cavallo, Fabrizio Stracci, Antonio G Russo, Adele Caldarella, Stefano Rosso, Antonino Musolino, Lucia Mangone, Claudia Casella, Mario Fusco, Giovanna Tagliabue, Daniela Piras, Rosario Tumino, Linda Guarda, Ylenia M Dinaro, Silvano Piffer, Pasquala Pinna, Guido Mazzoleni, Anna C Fanetti, Luigino Dal Maso, ,

<h4>Background</h4>The number of patients living after a cancer diagnosis is increasing, especially after thyroid cancer (TC). This study aims at evaluating both the risk of a second primary cancer (SPC) in TC patients and the risk of TC as a SPC.<h4>Methods</h4>We analyzed two population-based cohorts of individuals with TC or ... Read more >>

Cancer Med (Cancer medicine)
[2021, :]

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FIGO good practice recommendations on the importance of registry data for monitoring rates and health systems performance in prevention and management of preterm birth.

J Frederik Frøen, Ana Bianchi, Ann-Beth Moller, Bo Jacobsson, ,

FIGO calls for strengthening of health information systems for reproductive, maternal, newborn, and child health services, co-designed with users, to ensure the timely accessibility of actionable high-quality data for all stakeholders engaged in preventing and managing preterm birth consequences. FIGO calls for strengthening of investments and capacity for implementing digital ... Read more >>

Int J Gynaecol Obstet (International journal of gynaecology and obstetrics: the official organ of the International Federation of Gynaecology and Obstetrics)
[2021, 155(1):5-7]

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Characteristics and Quality of National Cardiac Registries: A Systematic Review.

Luke P Dawson, Sinjini Biswas, Jeffrey Lefkovits, Dion Stub, Luke Burchill, Sue M Evans, Christopher Reid, David Eccleston,

<h4>Background</h4>National cardiac registries are increasingly used for informing health policy, improving the quality and cost-effectiveness of patient care, clinical research, and monitoring the safety of novel treatments. However, the quality of registries is variable. We aimed to assess the characteristics and quality of national cardiac registries across all subspecialties of ... Read more >>

Circ Cardiovasc Qual Outcomes (Circulation. Cardiovascular quality and outcomes)
[2021, :CIRCOUTCOMES121007963]

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Patient perceptions of the challenges of recruitment to a renal randomised trial registry: a pilot questionnaire-based study.

Ellen Murphy, Aoife O'Keeffe, Niamh O Shea, Eva Long, Joseph A Eustace, Frances Shiely,

<h4>Background</h4>Randomised controlled trials (RCTs) are the gold standard for demonstrating the efficacy of new therapies. However, issues of external validity often affect result application to real-world settings. Using registries to conduct RCTs is a reasonably new practice, but is appealing because it combines the benefits of both observational studies and ... Read more >>

Trials (Trials)
[2021, 22(1):597]

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Leveraging the Tracking Operations and Outcomes for Plastic Surgeons Database for Plastic Surgery Research: A "How-To" Guide.

Denis Souto Valente, Alison E Kaye, Christopher J Simmons, Rafaela K Zanella, Christopher J Pannucci,

<h4>Summary</h4>The Plastic Surgeries Registry Network supported by the American Society of Plastic Surgeons (ASPS) and the Plastic Surgery Foundation offers a variety of options for procedural data and outcomes assessment and research. The Tracking Operations and Outcomes for Plastic Surgeons (TOPS) database is a registry created for and used by ... Read more >>

Plast Reconstr Surg (Plastic and reconstructive surgery)
[2021, :]

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Time on treatment with abiraterone and enzalutamide in the Patient-overview Prostate Cancer in The National Prostate Cancer Register of Sweden.

Giuseppe Fallara, Charlotte Alverbratt, Hans Garmo, Hanna Vikman, Marie Hjelm Eriksson, Ingela Franck Lissbrant, Pär Stattin,

<h4>Background</h4>There are little and inconsistent data from clinical practice on time on treatment with the androgen receptor-targeted drugs (ART) abiraterone and enzalutamide in men with metastatic castration-resistant prostate cancer (mCRPC). We assessed time on treatment with ART and investigated predictors of time on treatment.<h4>Material and methods</h4>Time on treatment with ART ... Read more >>

Acta Oncol (Acta oncologica (Stockholm, Sweden))
[2021, :1-8]

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The de novo FAIRification process of a registry for vascular anomalies.

Karlijn H J Groenen, Annika Jacobsen, Martijn G Kersloot, Bruna Dos Santos Vieira, Esther van Enckevort, Rajaram Kaliyaperumal, Derk L Arts, Peter A C 't Hoen, Ronald Cornet, Marco Roos, Leo Schultze Kool,

<h4>Background</h4>Patient data registries that are FAIR-Findable, Accessible, Interoperable, and Reusable for humans and computers-facilitate research across multiple resources. This is particularly relevant to rare diseases, where data often are scarce and scattered. Specific research questions can be asked across FAIR rare disease registries and other FAIR resources without physically combining ... Read more >>

Orphanet J Rare Dis (Orphanet journal of rare diseases)
[2021, 16(1):376]

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Reporting Transparency and Completeness in Trials: Paper 2 - Reporting of randomised trials using registries was often inadequate and hindered the interpretation of results.

Kimberly A Mc Cord, Mahrukh Imran, Danielle B Rice, Stephen J McCall, Linda Kwakkenbos, Margaret Sampson, Ole Fröbert, Chris Gale, Sinéad M Langan, David Moher, Clare Relton, Merrick Zwarenstein, Edmund Juszczak, Brett D Thombs, ,

<h4>Objective</h4>Registries are important data sources for randomised controlled trials (RCTs), but reporting of how they are used may be inadequate. The objective was to describe the current adequacy of reporting of RCTs using registries.<h4>Study design and setting</h4>We used a database of trials using registries from a scoping review supporting the ... Read more >>

J Clin Epidemiol (Journal of clinical epidemiology)
[2021, :]

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Outcome data from >10,000 multiple myeloma patients in the Danish and Swedish national registries.

Cecilie Hveding Blimark, Annette Juul Vangsted, Tobias W Klausen, Henrik Gregersen, Agoston Gyula Szabo, Emil Hermansen, Göran Wålinder, Dorota Knut-Bojanowska, Chenyang Zang, Ingemar Turesson, ,

We describe real-world evidence (RWE) from the nationwide Swedish and Danish registries that provide important information on incidence and outcome in multiple myeloma (MM). We find that both the incidence of MM and the median age at diagnosis is higher in national registries compared to results from referral centres, indicating ... Read more >>

Eur J Haematol (European journal of haematology)
[2021, :]

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Leveraging patient-reported outcomes (PROs) in patients with pancreatic cancer: The Pancreatic Cancer Action Network (PanCAN) online patient registry experience.

Arjun Gupta, Omar Khalid, Cassadie Moravek, Anica Lamkin, Lynn M Matrisian, Sudheer Doss, Crystal S Denlinger, Andrew L Coveler, Colin D Weekes, Eric J Roeland, Andrew E Hendifar, Ryan D Nipp,

<h4>Background</h4>The Pancreatic Cancer Action Network (PanCAN) Patient Registry is an online, pancreatic cancer-specific, global registry enabling patients to self-report sociodemographics, disease/management characteristics, and patient-reported outcomes (PROs). We sought to describe the creation, user experience, and research potential of the PanCAN Registry.<h4>Methods</h4>We obtained data to describe (1) the creation of the ... Read more >>

Cancer Med (Cancer medicine)
[2021, :]

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Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study.

M Loane, J E Given, J Tan, A Reid, D Akhmedzhanova, G Astolfi, I Barišić, N Bertille, L B Bonet, C C Carbonell, O Mokoroa Carollo, A Coi, J Densem, E Draper, E Garne, M Gatt, S V Glinianaia, A Heino, E Den Hond, S Jordan, B Khoshnood, S Kiuru-Kuhlefelt, K Klungsøyr, N Lelong, L R Lutke, A J Neville, L Ostapchuk, A Puccini, A Rissmann, M Santoro, I Scanlon, G Thys, D Tucker, S K Urhoj, H E K de Walle, D Wellesley, O Zurriaga, J K Morris,

EUROCAT is a European network of population-based congenital anomaly (CA) registries. Twenty-one registries agreed to participate in the EUROlinkCAT study to determine if reliable information on the survival of children born with a major CA between 1995 and 2014 can be obtained through linkage to national vital statistics or mortality ... Read more >>

PLoS One (PloS one)
[2021, 16(8):e0256535]

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Comparing the effect of xenon and sevoflurane anesthesia on postoperative neural injury biomarkers: a randomized controlled trial.

Steven McGuigan, Lisbeth Evered, David A Scott, Brendan Silbert, Henrik Zetterberg, Kaj Blennow,

General anesthesia and surgery are associated with an increase in neural injury biomarkers. Elevations of these neural injury biomarkers in the perioperative period are associated with postoperative delirium. Xenon has been shown to be protective against a range of neurological insults in animal models. It remains to be seen if ... Read more >>

Med Gas Res (Medical gas research)
[2022, 12(1):10-17]

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Influence de la nPCR et de la lymphopénie sur la réponse humorale au vaccin Pfizer-BioNtech chez les patients hémodialysés

A. Jacq, M. Legendre, J.M. Rebibou,

<h4>Introduction</h4> La maladie Coronavirus disease 2019 (COVID-19) est associée à une morbidité et une mortalité importante chez les patients hémodialysés. Ces patients présentent une altération du fonctionnement du système immunitaire. <h4>Description</h4> Nous avons souhaité évaluer la réponse humorale au vaccin à ARN messager par Pfizer chez les patients hémodialysés ainsi ... Read more >>

Nephrol Ther (Nephrologie & therapeutique)
[2021, 17(5):353-353]

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Clinical and Pathologic Correlation of Cutaneous COVID-19 Vaccine Reactions including V-REPP: A Registry Based Study.

Devon E McMahon, Carrie L Kovarik, William Damsky, Misha Rosenbach, Jules B Lipoff, Anisha Tyagi, Grace Chamberlin, Ramie Fathy, Rosalynn M Nazarian, Seemal R Desai, Henry W Lim, Bruce H Thiers, George J Hruza, Lars E French, Kimberly Blumenthal, Lindy P Fox, Esther E Freeman,

<h4>Background</h4>Cutaneous reactions after COVID-19 vaccination have been commonly reported. However, histopathologic features and clinical correlations have not been well characterized.<h4>Methods</h4>From an international registry, we evaluated all reports of COVID-19 associated vaccination reactions for history of skin biopsy. When histopathology reports were available, we categorized them by reaction patterns.<h4>Results</h4>Of 803 vaccine ... Read more >>

J Am Acad Dermatol (Journal of the American Academy of Dermatology)
[2021, :]

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