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Journal Palliat Med

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Unmet device reprogramming needs at the end of life among patients with implantable cardioverter defibrillator: A systematic review and meta-analysis.

Valentina Gonzalez-Jaramillo, Piotr Sobanski, Jose A Calvache, Luisa F Arenas-Ochoa, Oscar H Franco, Lukas Hunziker, Steffen Eychmüller, Maud Maessen,

BACKGROUND:Use of implantable cardioverter defibrillators is increasingly common. As patients approach the end of life, it is appropriate to deactivate the shock function. AIM:To assess the prevalence of implantable cardioverter defibrillator reprogramming to deactivate the shock function at the end of life and the prevalence of advance directives among this ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929548]

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Process evaluation of the Cancer Home-Life Intervention: What can we learn from it for future intervention studies?

Karen la Cour, Lisa Gregersen Oestergaard, Åse Brandt, Sara Marie Hebsgaard Offersen, Line Lindahl-Jacobsen, Malcolm Cutchin, Marc Sampedro Pilegaard,

BACKGROUND:The Cancer Home-Life Intervention showed no significant effects, and examination of the processes affecting or inhibiting outcomes is relevant. AIM:To evaluate the Cancer Home-Life Intervention for its processes of implementation, mechanisms of impact and contextual factors. DESIGN:Process evaluation conducted alongside the randomised controlled trial, using quantitative and qualitative methods (ClinicalTrials.gov ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320939227]

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Mouthpiece ventilation in the management of dyspnea: A single-arm pilot study.

Juho T Lehto, Sirpa Leivo-Korpela, Tarja Korhonen, Heidi A Rantala, Hanna Raunio, Tiina Lyly-Yrjänäinen, Lauri Lehtimäki,

BACKGROUND:Noninvasive ventilation may relieve dyspnea in advanced diseases, but noninvasive ventilation through mouthpiece has not been tested in palliative care. AIM:To assess the feasibility of mouthpiece ventilation in relieving dyspnea among patients with advanced disease. DESIGN:In this prospective single-arm pilot study, the change in dyspnea by mouthpiece ventilation was measured ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320935003]

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End-of-life care in COVID-19: An audit of pharmacological management in hospital inpatients.

Timothy Jackson, Katie Hobson, Hannah Clare, Daniel Weegmann, Catherine Moloughney, Sally McManus,

BACKGROUND:Hospital clinicians have had to rapidly develop expertise in managing the clinical manifestations of COVID-19 including symptoms common at the end of life, such as breathlessness and agitation. There is limited evidence exploring whether end-of-life symptom control in this group requires new or adapted guidance. AIM:To review whether prescribing for ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320935361]

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Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices.

Nikolaos Efstathiou, Brandi Vanderspank-Wright, Amanda Vandyk, Mustafa Al-Janabi, Zeinab Daham, Aimee Sarti, Jesse W Delaney, James Downar,

BACKGROUND:During the terminal withdrawal of life-sustaining measures for intensive care patients, the removal of respiratory support remains an ambiguous practice. Globally, perceptions and experiences of best practice vary due to the limited evidence in this area. AIM:To identify, appraise and synthesise the latest evidence around terminal withdrawal of mechanical ventilation ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320935002]

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A randomised phase II trial testing the acceptability and feasibility of a narrative approach to public health communication to increase community engagement with palliative care.

Anna Collins, Sue-Anne McLachlan, Mike Hill, Sue Collins, Jennifer Philip,

BACKGROUND:Communities have limited understanding of palliative care, creating barriers to informed choice around consideration of a full range of care options in the event of serious illness. Few empirically tested interventions are available to educate community about palliative care, and ultimately improve timely access to these services. AIM:To test the ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320932766]

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The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review.

Emily Adam, Katherine E Sleeman, Sarah Brearley, Katherine Hunt, Irene Tuffrey-Wijne,

BACKGROUND:There is evidence that people with intellectual disabilities experience healthcare inequalities, including access to specialist palliative care, but to date, there has not been a systematic review of empirical evidence. AIM:To identify the palliative care needs of adults with intellectual disabilities and the barriers and facilitators they face in accessing ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320932774]

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Similar levels of symptoms and problems were found among patients referred to specialized palliative care by general practitioners and hospital physicians: A nationwide register-based study of 31,139 cancer patients.

Maiken Bang Hansen, Lone Ross, Morten Aagaard Petersen, Mathilde Adsersen, Leslye Rojas-Concha, Mogens Groenvold,

BACKGROUND:Previous studies suggest that the symptomatology threshold (i.e. the level and types of symptoms) for a referral to specialized palliative care might differ for doctors in different parts of the healthcare system; however, it has not yet been investigated. AIM:To investigate if the number and level of symptoms/problems differed for ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320932790]

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'This is your golden time. You enjoy it and you've plenty time for crying after': How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis - A qualitative study.

Dominika Lisiecka, Helen Kelly, Jeanne Jackson,

BACKGROUND:Dysphagia (swallowing impairments) is a well-recognised symptom of amyotrophic lateral sclerosis. Caring for a person with amyotrophic lateral sclerosis has been recognised as a complex and demanding task. No study to date investigated the impact of dysphagia on the lives of caregivers of people with amyotrophic lateral sclerosis. AIM:To investigate ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320932754]

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The roles, responsibilities and practices of healthcare assistants in out-of-hours community palliative care: A systematic scoping review.

Anne Fee, Deborah Muldrew, Paul Slater, Sheila Payne, Sonja McIlfatrick, Tracey McConnell, Dori-Anne Finlay, Felicity Hasson,

BACKGROUND:Access to community palliative care 'out-of-hours' - defined as care provided after the normal hours of work - is advocated globally. Healthcare assistants, who provide care under the direction of a qualified professional, are increasingly employed to help deliver such care, yet there is a little understanding regarding their role, ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929559]

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Clinical uncertainty and Covid-19: Embrace the questions and find solutions.

Jonathan Koffman, Jamie Gross, Simon Noah Etkind, Lucy E Selman,

Palliat Med (Palliative medicine)
[2020, 34(7):829-831]

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Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care.

Yousuf ElMokhallalati, Stephen H Bradley, Emma Chapman, Lucy Ziegler, Fliss Em Murtagh, Miriam J Johnson, Michael I Bennett,

BACKGROUND:Despite increasing evidence of the benefits of early access to palliative care, many patients do not receive palliative care in a timely manner. A systematic approach in primary care can facilitate earlier identification of patients with potential palliative care needs and prompt further assessment. AIM:To identify existing screening tools for ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929552]

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Building organizational compassion among teams delivering end-of-life care in the intensive care unit: The 3 Wishes Project.

Meredith Vanstone, Marina Sadik, Orla Smith, Thanh H Neville, Allana LeBlanc, Anne Boyle, France J Clarke, Marilyn E Swinton, Alyson Takaoka, Feli Toledo, Andrew J Baker, Peter Phung, Deborah J Cook,

BACKGROUND:The 3 Wishes Project is a semistructured program that improves the quality of care for patients dying in the intensive care unit by eliciting and implementing wishes. This simple intervention honors the legacy of patients and eases family grief, forging human connections between family members and clinicians. AIM:To examine how ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929538]

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The occurrence and timing of delirium in acute care hospitalizations in the last year of life: A population-based retrospective cohort study.

Colleen Webber, Christine L Watt, Shirley H Bush, Peter G Lawlor, Robert Talarico, Peter Tanuseputro,

BACKGROUND:Delirium is a distressing neurocognitive disorder that is common among terminally ill individuals, although few studies have described its occurrence in the acute care setting among this population. AIM:To describe the prevalence of delirium in patients admitted to acute care hospitals in Ontario, Canada, in their last year of life ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929545]

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Patients' and caregivers' experiences of driving with chronic breathlessness before and after regular low-dose sustained-release morphine: A qualitative study.

Diana H Ferreira, Jason W Boland, Slavica Kochovska, Aaron Honson, Jane L Phillips, David C Currow,

BACKGROUND:Chronic breathlessness is a disabling syndrome that profoundly impacts patients' and caregivers' lives. Driving is important for most people, including those with advanced disease. Regular, low-dose, sustained-release morphine safely reduces breathlessness, but little is known about its impact on driving. AIM:To understand patients' and caregivers' (1) perspectives and experiences of ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929549]

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Trends analysis of specialized palliative care services in 51 countries of the WHO European region in the last 14 years.

Natalia Arias-Casais, Jesús López-Fidalgo, Eduardo Garralda, Juan José Pons, John Y Rhee, Radbruch Lukas, Liliana de Lima, Carlos Centeno,

BACKGROUND:Service provision is a key domain to assess national-level palliative care development. Three editions of the European Association for Palliative Care (EAPC) Atlas of Palliative Care monitored the changes in service provision across Europe since 2005. AIM:To study European trends of specialized service provision at home care teams, hospital support ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320931341]

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Comparison of end-of-life care in people with chronic obstructive pulmonary disease or lung cancer: A systematic review.

Stacey J Butler, Lauren Ellerton, Andrea S Gershon, Roger S Goldstein, Dina Brooks,

BACKGROUND:Palliative care has been widely implemented in clinical practice for patients with cancer but is not routinely provided to people with chronic obstructive pulmonary disease. AIM:The study aims were to compare palliative care services, medications, life-sustaining interventions, place of death, symptom burden and health-related quality of life among chronic obstructive ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929556]

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A drive for structure: A longitudinal qualitative study of the implementation of the Carer Support Needs Assessment Tool (CSNAT) intervention during hospital discharge at end of life.

Alex Hall, Gail Ewing, Christine Rowland, Gunn Grande,

BACKGROUND:Informal carers are essential in enabling discharge home from hospital at end of life and supporting palliative patients at home, but are often ill-prepared for the role. Carers' support needs are rarely considered at discharge. If carers are less able to cope with home care, patient care may suffer and ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320930935]

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Nursing competencies across different levels of palliative care provision: A systematic integrative review with thematic synthesis.

Minna Hökkä, Sandra Martins Pereira, Tarja Pölkki, Helvi Kyngäs, Pablo Hernández-Marrero,

BACKGROUND:Palliative care exists in diverse healthcare settings. Nurses play a crucial role in its provision. Different levels of palliative care provision and education have been recognized in the literature. Therefore, nurses need a set of various competencies to provide high-quality palliative care. AIMS:To systematically synthesize the empirical evidence of (1) ... Read more >>

Palliat Med (Palliative medicine)
[2020, 34(7):851-870]

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A case series of suprascapular nerve block (with an historical comparator) for shoulder pain in motor neurone disease.

E Michael Shanahan, Karen Glaezter, Tiffany Gill, Catherine Hill, Scott Graf, Peter Allcroft,

BACKGROUND:Shoulder pain is a distressing but under-reported and poorly managed symptom in people with motor neurone disease. OBJECTIVES:This study aimed to assess the efficacy of suprascapular nerve block for the management of shoulder pain in patients with motor neurone disease. METHODS:A total of 27 patients with motor neurone disease and ... Read more >>

Palliat Med (Palliative medicine)
[2020, :269216320929553]

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The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis.

Emily Harrop, Fiona Morgan, Mirella Longo, Lenira Semedo, Jim Fitzgibbon, Sara Pickett, Hannah Scott, Kathy Seddon, Stephanie Sivell, Annmarie Nelson, Anthony Byrne,

BACKGROUND:Bereavement support is a key component of palliative care, with different types of support recommended according to need. Previous reviews have typically focused on specialised interventions and have not considered more generic forms of support, drawing on different research methodologies. AIM:To review the quantitative and qualitative evidence on the effectiveness ... Read more >>

Palliat Med (Palliative medicine)
[2020, 34(7):871-888]

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Corrigendum: Pressure ulcers in patients receiving palliative care: a systematic review.

Palliat Med (Palliative medicine)
[2020, 34(7):969]

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Building trust and facilitating goals of care conversations: A qualitative study in people with heart failure receiving home hospice care.

Dawon Baik, David Russell, Lizeyka Jordan, Daniel D Matlock, Frances Dooley, Ruth Masterson Creber,

BACKGROUND:Despite a majority of persons receiving hospice care in their homes, there are gaps in understanding how to facilitate goals of care conversations between persons with heart failure and healthcare providers. AIM:To identify barriers and facilitators which shape goals of care conversations for persons with heart failure in the context ... Read more >>

Palliat Med (Palliative medicine)
[2020, 34(7):925-933]

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Nurses' self-efficacy, rather than their knowledge, is associated with their engagement in advance care planning in nursing homes: A survey study.

Joni Gilissen, Lara Pivodic, Annelien Wendrich-van Dael, Wilfried Cools, Robert Vander Stichele, Lieve Van den Block, Luc Deliens, Chris Gastmans,

BACKGROUND:Considering social cognitive theory and current literature about successful advance care planning in nursing homes, sufficient knowledge and self-efficacy are important preconditions for staff to be able to carry out advance care planning in practice. AIM:Exploring to what extent nurses' knowledge about and self-efficacy is associated with their engagement in ... Read more >>

Palliat Med (Palliative medicine)
[2020, 34(7):917-924]

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A mixed-methods pilot study of 'LIFEView' audiovisual technology: Virtual travel to support well-being and quality of life in palliative and end-of-life care patients.

Monisha Kabir, Jill L Rice, Shirley H Bush, Peter G Lawlor, Colleen Webber, Pamela A Grassau, Bahareh Ghaedi, Misha Dhuper, Rebekah Hackbusch,

BACKGROUND:There is evidence that psychosocial and spiritual interventions of short duration, such as reminiscence therapy, provide positive impacts on quality of life and emotional and existential well-being in adults receiving palliative care. AIM:To determine (1) the feasibility of integrating 'LIFEView', a video-based software with >1600 videos of world destinations, in ... Read more >>

Palliat Med (Palliative medicine)
[2020, 34(7):954-965]

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