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Journal J Palliat Care

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Choosing Educational Resources to Build Interprofessional, Palliative Care Competency: A Replicable Review Methodology.

Kathleen Yue, Carolyn Tayler,

AIM/OBJECTIVE:The purpose of the project was to provide information to inform the choice of educational resources available in British Columbia to support palliative care competency development for 4 disciplines: nurses, physicians, health care assistants, and social workers/counsellors. This article will describe the process of resource review. Results of the review ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720935218]

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Attitude and Barriers in Palliative Care and Advance Care Planning in Nonmalignant Chronic Lung Disease: Results From a Danish National Survey.

Anita Rath Sørensen, Kristoffer Marsaa, Thomas Skovhus Prior, Elisabeth Bendstrup,

INTRODUCTION:Patients with chronic obstructive pulmonary disease and interstitial lung disease have a significant burden of symptoms. Many are not offered palliative care (PC). Our aim was to investigate the attitudes to and barriers for PC among physicians. METHOD:A web-based survey was conducted among members of the Danish Respiratory Society. The ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720936012]

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Are You Prepared for End-of-Life Care? A Content Review of Canadian End-of-Life Care Standards and Competencies for Saskatchewan.

Michelle Buness, Roslyn M Compton, Madeline Press, Cindy Peternelj-Taylor,

BACKGROUND:The provision of end-of-life care is receiving attention locally, provincially, and nationally in Canada. It is important to ensure that interprofessional standards and competencies are in place to provide quality end-of-life care that meets the needs of patients and their families. The purpose of this content review was to identify ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720935231]

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Translating Pediatric Hospital Interpreters' Feedback From Difficult Conversations into Improved Communication.

Meaghann S Weaver, Alicia Roeth, Hema Navaneethan, Valerie K Shostrom, Melissa Contreras-Nourse,

BACKGROUND:Medical interpreters are critical mediators in communication with pediatric subjects and families to include participation in difficult conversations. OBJECTIVE:The objective of this pilot study was to provide suggestions from medical interpreters to palliative care teams as to how to effectively incorporate medical interpreters into end-of-life conversations. SUBJECTS AND METHOD:Participants included ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720933112]

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Hearing and Heeding the Voices of those With Advanced Illnesses.

Katherine M Piderman, Carmen Radecki Breitkopf, Sarah M Jenkins, Cory Ingram, Terin T Sytsma, Maria I Lapid, Beba S Tata, Krishanu Chatterjee, Jason S Egginton, Aminah Jatoi,

OBJECTIVES:To describe the feasibility of a chaplain-led spiritually focused life review interview and the development of a spiritual legacy document (SLD) for patients with advanced diseases and to describe changes in spiritual well-being (SWB), spiritual coping strategies (SC), and quality of life (QOL) after receiving the SLD. PATIENTS AND METHODS:In ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720928623]

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Trends and Utilization of Inpatient Palliative Care Among Patients With Metastatic Bladder Cancer.

Hedong Han, Feifei Yu, Cheng Wu, Lihe Dai, Yiming Ruan, Yang Cao, Jia He,

OBJECTIVE:To explore the trends and utilization of palliative care (PC) service among inpatients with metastatic bladder cancer (MBC). METHODS:A retrospective, cross-sectional analysis was performed using data from the 2003 to 2014 National Inpatient Sample. Palliative care was identified through International Classification of Diseases, Ninth Revision code V66.7. Demographics, comorbidities, hospital ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720924936]

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Canada's Evolving Medicare: End-of-Life Care.

Nicole MacPherson, Terrence Montague, John Aylen, Lesli Martin, Amédé Gogovor, Sharon Baxter, Joanna Nemis-White,

A challenging issue in contemporary Canadian Medicare is the evolution of end-of-life care. Utilizing data from the 2016 and 2018 Health Care in Canada (HCIC) surveys, this paper compares the support and priorities of the adult public (n = 1500), health professionals (n = 400), and administrators (n = 100) ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720924169]

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Death and End of Life: Perceptions Throughout The Career About Death, Palliative Care, and Educational Process.

Maria Luiza Galoro Corradi, Etienne Duim, Cibele Isaac Saad Rodrigues,

PURPOSE:To evaluate the perception of attending physicians, medical residents, and undergraduate medical students about death and dying, the end of life (EoL), and palliative care (PC) during training and clinical practice, highlighting knowledge gaps, and the changes needed in medical school curricula. METHOD:Cross-sectional study of 12 attending physicians, residents, and ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720923435]

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Evaluation of a Video Decision Aid to Reduce Decisional Conflict in Physician Orders for Life-Sustaining Treatment (POLST) Decision-Making.

Jarred V Gallegos, Barry Edelstein, Alvin H Moss,

BACKGROUND/OBJECTIVES:Physician Orders for Life-Sustaining Treatment (POLST) is recommended as a preferred practice for advance care planning with seriously ill patients. Decision aids can assist patients in advance care planning, but there are limited studies on their use for POLST decisions. We hypothesized that after viewing a POLST video, decision aid ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720923437]

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Building a Medical Undergraduate Palliative Care Curriculum: Lessons Learned.

Shirley H Bush, Valérie Gratton, Monisha Kabir, Paula Enright, Pamela A Grassau, Jill Rice, Pippa Hall,

Previous literature demonstrates that current palliative care training is in need of improvement for medical students in global, European and Canadian contexts. The training of medical undergraduates is key to ensure that the ongoing and increasing need for enhanced access to palliative care across all settings and communities is met. ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720916565]

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The Role of Hospice Palliative Care Volunteers With Respect to Conversations About Medical Assistance in Dying (MAiD).

Stephen Claxton-Oldfield,

J Palliat Care (Journal of palliative care)
[2020, :825859720916563]

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Palliative Care and the Tragedy of the Commons.

Lauren K Hall, Randy Hebert,

Many of the paradoxes of end-of-life care, including the combination of overtreatment and low quality of life, can be explained in part by the fact that the structure of end-of-life care is a tragedy of the commons, where no one provider "owns" the patient or is responsible for the outcomes ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720909555]

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To What Extent Does Clinically Assisted Nutrition and Hydration Have a Role in the Care of Dying People?

Adam Nicholas Carter,

The question over whether to administer clinically assisted nutrition and hydration (CANH) to a dying patient is controversial, with much debate concerning this sensitive issue. The administration of CANH poses clinical and ethical dilemmas, with supporting and opposing views. Proposed positive effects of CANH include preventing thirst, delirium, hypercalcemia, and ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720907426]

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Transitioning to Life in a Nursing Home: The Potential Role of Palliative Care.

Elizabeth Halifax, Nhat Minh Bui, Lauren J Hunt, Caroline E Stephens,

BACKGROUND AND OBJECTIVES:Transitioning to a nursing home (NH) is a major life event for 1.4 million NH residents in the United States. Most post-acute NH admissions plan for rehabilitation and discharge home, but with nearly 70% of NH residents being palliative care (PC) eligible, many evolve into long-term placements secondary ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720904802]

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Hospice Utilization Among Residents in Long-Term Care Facilities.

Beibei Xiong, Shannon Freeman, Davina Banner, Lina Spirgiene,

BACKGROUND:Hospice care can improve quality of life for persons nearing end of life, yet little is known about utilization of hospice care among persons residing in long-term care facilities (LTCFs). Given the increasing number of deaths that occur in LTCFs, it is important to examine hospice care practices in LTCFs. ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720907415]

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Gender Differences in End-of-Life Care in Older Mexican American Adults.

Evangeline M Ortiz-Dowling, Janice D Crist, Kimberly Shea, Linda R Phillips,

Mexican Americans (MAs), 1 of 10 subgroups of Latinos, are the largest and fastest growing Latino subgroup in the United States; yet, their access to end-of-life (EOL) care using hospice services is low. An investigation was needed into extant research-based knowledge about factors influencing EOL care decisions among MAs to ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859720907419]

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Engaging Specialist Palliative Care in the Management of Amyotrophic Lateral Sclerosis: A Patient-, Family-, and Provider-Based Approach.

Karla T Washington, Klaudia Kukulka, Raghav Govindarjan, David R Mehr,

PURPOSE:To describe key stakeholders' perspectives on specialist palliative care and its integration into the management of amyotrophic lateral sclerosis (ALS). METHODS:The study conducted was a qualitative, noninterventional, descriptive study. Data were collected via individual interviews of 42 stakeholders (n = 14 patients, n = 16 family caregivers, and n = ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, :825859719895827]

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Sustainability of Palliative Care in a Rural Hospital in Tanzania: A Longitudinal and Prospective 4-Year Study.

Reino Torsti Ilmari Pöyhiä, Emmanuel Owden Mwalumuli, Aida Charles Mtega, Jackson John Vegula,

BACKGROUND:Palliative care has been developed in recent years in many sub-Saharan countries in Africa due to activities of African Association for Palliative Care. Palliative care units have been established also in most hospitals in Tanzania. Yet very little is known about their functions. Long-term studies about the sustainability of palliative ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, 35(3):192-198]

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Life, Love, Hope, Faith, and Death-Too Complex for Likert.

Leigh M Vaughan, Emma L Kofmehl,

More research to examine factors contributing to health-care disparities at the end of life is greatly needed. This article outlines a failed attempt to quantify some of the motivators in medical decision-making for African American families faced with a decision to pursue or forego a percutaneous endoscopic gastrostomy in a ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, 35(2):116-119]

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A Retrospective Study Reviewing Interprofessional Advance Care Planning Group Discussions in Pulmonary Rehabilitation: A Proof-of-Concept and Feasibility Study.

Daphna Grossman, Amanda Katz, Karen Lock, Valerie B Caraiscos,

BACKGROUND:Advance care planning (ACP) is a process of reflection and discussion wherein a patient, in consultation with a health-care provider, family, and/or loved ones, clarifies values and treatment preferences and establishes goals, including a plan for end-of-life (EOL) care. Advance care planning encompasses appreciating and understanding illness and treatment options, ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719896421]

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An Environmental Scan of Caregiver Support Resources Provided by Hospice Organizations.

Julia Gyapay, Shannon Freeman, Donna Flood,

BACKGROUND:Informal caregiver support programs offered by hospice organizations support the health and wellbeing of clients and caregivers. However, an understanding of the best practices for informal caregiver support programs currently undertaken across Canada remains unknown, particularly across the province of British Columbia. AIM:The aim of the present study was to ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, 35(3):135-142]

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Social and Health System Complexities Impacting on Decision-Making for Utilization of Oncology and Palliative Care in an African Context: A Qualitative Study.

David A Agom, Stuart Allen, Sarah Neill, Judith Sixsmith, Helen Poole, Tonia C Onyeka, Jude Ominyi,

BACKGROUND:There is a dearth of research focusing on identifying the social complexities impacting on oncology and palliative care (PC), and no study has explored how the health-care system in Nigeria or other African contexts may be influencing utilization of these services. AIM:This study explored how social complexities and the organization ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, 35(3):185-191]

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Sowing Across a State: Development and Delivery of a Grassroots Pediatric Palliative Care Nursing Curriculum.

Meaghann S Weaver, Rebecca Jenkins, Christopher Wichman, Jacob E Robinson, Meghan R Potthoff, Traci Menicucci, Catherine A Vail,

BACKGROUND:Rural pediatricians and adult-trained hospice teams report feeling ill-prepared to care for children at end of life, resulting in geographies in which children are not able to access home-based services. OBJECTIVES:To develop a pediatric palliative care curriculum for inpatient nurses and adult-trained hospice teams caring for children in a rural ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719889700]

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Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study.

Emily Pinto Taylor, Benjamin Doolittle,

INTRODUCTION:Many children are born with life-limiting illnesses. Medical decision-making for these children by caregivers is complex and causes significant psychosocial distress, which can be partially alleviated by effective communication with medical providers. In order for providers to support caregivers, this study explores how caregivers make decisions regarding the medical care ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, 35(3):161-166]

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Symptom Burden in Patients With Home Care Who Are at Risk for Malnutrition: A Cross-Sectional Study.

Erika Berggren, Peter Strang, Ylva Orrevall, Ann Ödlund Olin, Lena Törnkvist,

In Sweden, patients in early palliative stages of illness are cared for in primary care and often offered home care. Many are older and at risk for malnutrition, but little is known about their symptom burden and nutritional problems. This cross-sectional study divided older patients in home care into those ... Read more >>

J Palliat Care (Journal of palliative care)
[2020, 35(2):103-109]

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