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Journal J Palliat Care

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Sowing Across a State: Development and Delivery of a Grassroots Pediatric Palliative Care Nursing Curriculum.

Meaghann S Weaver, Rebecca Jenkins, Christopher Wichman, Jacob E Robinson, Meghan R Potthoff, Traci Menicucci, Catherine A Vail,

BACKGROUND:Rural pediatricians and adult-trained hospice teams report feeling ill-prepared to care for children at end of life, resulting in geographies in which children are not able to access home-based services. OBJECTIVES:To develop a pediatric palliative care curriculum for inpatient nurses and adult-trained hospice teams caring for children in a rural ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719889700]

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Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study.

Emily Pinto Taylor, Benjamin Doolittle,

INTRODUCTION:Many children are born with life-limiting illnesses. Medical decision-making for these children by caregivers is complex and causes significant psychosocial distress, which can be partially alleviated by effective communication with medical providers. In order for providers to support caregivers, this study explores how caregivers make decisions regarding the medical care ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719885947]

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Symptom Burden in Patients With Home Care Who Are at Risk for Malnutrition: A Cross-Sectional Study.

Erika Berggren, Peter Strang, Ylva Orrevall, Ann Ödlund Olin, Lena Törnkvist,

In Sweden, patients in early palliative stages of illness are cared for in primary care and often offered home care. Many are older and at risk for malnutrition, but little is known about their symptom burden and nutritional problems. This cross-sectional study divided older patients in home care into those ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719887240]

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Design and Preliminary Testing of the Caregiver-Centered Communication Questionnaire (CCCQ).

George Demiris, Freda DeKeyser Ganz, Claire J Han, Kenneth Pike, Debra Parker Oliver, Karla Washington,

The study objective was to develop and test a new survey instrument that measures caregiver-centered communication. We developed a questionnaire inspired by the National Cancer Institute framework on patient-centered communication, focusing on family caregiver communication for this tool. The questionnaire includes 5 subscales: exchange of information, relationship with team, emotions, ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719887239]

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Nebulized Vasopressin for the Control of Hematemesis and Hemoptysis in a Child With Recurrent, Refractory Stage III Burkitt Lymphoma.

Jennifer D Dulin, Patrick J Coyne,

BACKGROUND:Bleeding occurs with some regularity at the end of life. Patients often endure fatigue, weakness, pain, dyspnea and anxiety. These symptoms are magnified in visually apparent bleeds. Management can be particularly challenging as we attempt to balance therapies with goals of care. Children are at risk for such complications and ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719883844]

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Is a Spectrum the Best Metaphor for Leading Advance Care Planning Discussions?

Sean Marks,

Being able to elicit the fundamental values, hopes, and care preferences that drive clinical decision-making for patients with a life-limiting illness is considered a core clinical skill for many specialist and generalist clinicians. Such clinical skills have been described as a crucial component of patient-centered care, especially for those with ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719880518]

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Congenital Cardiothoracic Surgeons and Palliative Care: A National Survey Study.

Emily Morell, Jess Thompson, Satish Rajagopal, Elizabeth D Blume, Rachna May,

BACKGROUND:The majority of children with advanced heart disease in the inpatient setting die in an intensive care unit under 1 year of age following multiple interventions. While pediatric cardiology and palliative care provider attitudes have been described, little is known about pediatric cardiothoracic surgeon attitudes toward palliative care in children ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719874765]

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Family Outcomes and Perceptions of End-of-Life Care in the Intensive Care Unit: A Mixed-Methods Review.

Chiahui Chen, Jacqueline Michaels, Mary Ann Meeker,

The purpose of this review was to evaluate end-of-life care (EOLC) in the intensive care unit (ICU) from the perspective of family members. Sandelowski's segregated approach from Joanna Briggs Institute (JBI) Mixed-Methods Systematic Reviews guided this review. A search was conducted in PubMed, CINAHL, PsycINFO, EMBASE, and ProQuest databases and ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719874767]

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Pharmacist-Delivered Patient Care in an Interdisciplinary Team-Based Institutional Palliative Care Clinic, 2012 to 2018.

Lindsey E Dayer, Elizabeth R McDade, Sarah Harrington,

Palliative care services offered in the United States have grown substantially since the year 2000. These types of services have been shown to improve a patient's quality of life when presented with a serious or life-threatening disease or illness. An important characteristic of a quality palliative care service is the ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719869614]

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Cocreating Meaning Through Expressive Writing and Reading for Cancer Caregivers.

Yvonne W Leung, Marta M Maslej, Clara Ho, Shima Razavi, Paul Uy, Mehr-Afarin Hosseini, Jonathan Avery, Gary Rodin, Allan Peterkin,

PURPOSE:Caregivers of patients with cancer cope with socioemotional challenges, which can adversely affect their well-being. We developed an intervention, expressive writing and reading (EWR), to promote emotional processing and social connectedness among caregivers. In a single-arm pilot study, we assessed its feasibility and perceived usefulness. METHODS:Caregivers participated in weekly 1.5-hour ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719871538]

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Utilization and Costs of Health Care in a Kidney Supportive Care Program.

P Marcin Sowa, Louise Purtell, Wendy E Hoy, Helen G Healy, Ann Bonner, Luke B Connelly,

Kidney supportive care (KSC) is a patient-centered model of multidisciplinary care designed for patients with advanced chronic kidney disease (CKD) and end-stage kidney disease (ESKD). Our goal was to characterize the types, frequencies, and costs of services accessed by patients enrolled in a KSC program. We analyzed health care utilization ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719868174]

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Inpatient Palliative Care Consult: A Marker for High Risk of Readmission or Death in Discharged Oncology Inpatients.

Debbie Selby, Anita Chakraborty, Audrey Kim, Jeff Myers,

BACKGROUND:Emergency department visits or readmission to hospital are common particularly among those with advanced illness. Little prospective data exist on early outcomes specifically for patients seen by a palliative care consult service during their acute care admission, who are subsequently discharged home. METHODS:This study followed 62 oncology patients who had ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719869062]

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Safety and Efficacy of Venting Gastrostomy in Malignant Bowel Obstruction: A Systematic Review.

Sreeharshan Thampy, Pavan Najran, Damian Mullan, Hans-Ulrich Laasch,

Malignant bowel obstruction (MBO) is a common manifestation in patients with advanced intra-abdominal malignancy. It is especially common with bowel or gynecological cancers and produces distressing symptoms, including nausea, vomiting, and pain. Medical management options are less effective than decompressive strategies for symptom control. Surgery is the gold-standard treatment but ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719864915]

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Hospice Palliative Care (HPC) and Medical Assistance in Dying (MAiD): Results From a Canada-Wide Survey.

Rebecca Antonacci, Sharon Baxter, J David Henderson, Raza M Mirza, Christopher A Klinger,

BACKGROUND:With the legalization of medical assistance in dying (MAiD) in Canada, physicians and nurse practitioners now have another option within their scope of practice to consider alongside hospice palliative care (HPC) to support the patient and family regardless of their choice toward natural or medically assisted death. To elucidate insights ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719865548]

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Prognostication Accuracy, Confidence, and Decisional Conflict Across Training Levels of Internal Medicine Providers.

Aram A Namavar, Sitaram Vangala, Christopher Pietras, Erin P Dowling,

CONTEXT:Providing patient care at the end of a patient's life is a humbling and sacred experience for both patient and provider. Without a truthful and meaningful conversation about end-of-life care preferences, the care that is delivered may not be the care that the patient prefers. OBJECTIVES:Determine if there is a ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719867672]

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Administering Neostigmine as a Subcutaneous Infusion: A Case Report of a Patient Dying With Myasthenia Gravis.

Jonathan Hindmarsh, Elizabeth Woods, Mark Lee, Jonathan Pickard,

BACKGROUND:Abrupt withdrawal of pharmacological therapies for myasthenia gravis can exacerbate muscle weakness and even trigger myasthenic crisis. Such medications should ideally be continued, but how this can be achieved in patients approaching the end of life, particularly when enteral administration is compromised, has not been defined. CASE HISTORY:An 83-year-old man ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719869353]

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Would You Be Surprised if This Patient Died in the Next 12 Months? Using the Surprise Question to Increase Palliative Care Consults From the Emergency Department.

Henry Zeng, Paul Eugene, Mark Supino,

BACKGROUND:There is a growing movement to increase palliative care consults from the emergency department (ED) to reduce healthcare costs and improve quality of life. The surprise question is a screening tool that emergency medicine physicians may be able to use towards achieving this goal. OBJECTIVE:The objectives of this study were ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719866698]

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Reality, Delays, and Challenges within Pain Prevalence and Treatment in Palliative Care Patients: A Survey of First-Time Patients at the National Cancer Institute in Mexico.

Allende-Perez Silvia, Peña-Nieves Adriana, Garcia-Gonzalez Laura, Monreal-Carrillo Edith, Verastegui-Aviles Emma,

BACKGROUND:Cancer is a major burden of disease and a public health problem, as it is one of the main causes of morbidity and mortality worldwide. It is estimated that 25% of cancer patients die without receiving proper pain management. OBJECTIVE:To acknowledge the epidemiological profile of first-time patients at the palliative ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719861946]

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Impact of Poetry on Empathy and Professional Burnout of Health-Care Workers: A Systematic Review.

Kimberly L Schoonover, Daniel Hall-Flavin, Kevin Whitford, Mark Lussier, Alison Essary, Maria I Lapid,

BACKGROUND:Narrative medicine (NM) interventions have positively influenced empathy and burnout to varying degrees in health-care workers. We systematically reviewed the impact of poetry, a form of NM, on empathy and professional burnout. METHODS:A comprehensive search of Ovid MEDLINE(R) and Epub Ahead of Print, In-Process & Other Non-Indexed Citations, and Daily, ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719865545]

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Management of Cancer-Associated Intestinal Obstruction in the Final Year of Life.

Shaila J Merchant, Susan B Brogly, Christopher M Booth, Craig Goldie, Yingwei Peng, Sulaiman Nanji, Sunil V Patel, Katherine Lajkosz, Nancy N Baxter,

BACKGROUND:There is variation in the clinical management of intestinal obstruction (IO) in patients with cancer. We describe the management of cancer-associated IO near the end of life in a population-based cohort with universal health coverage. METHODS:Patients who died of gastric, colorectal, ovarian, and pancreatic cancers from 2002 to 2015 were ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719861935]

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Critical Care Nurses' Perceptions of Parenteral and Enteral Nutrition at the End-of-Life in South Korea.

Eun-Mi Seol, Chin Kang Koh, Eun Kyung Kim,

PURPOSE:The purpose of this study was to explore the perceptions of critical care nurses regarding the withdrawal or withholding of enteral nutrition (EN) and parenteral nutrition (PN) at the end-of-life, which is not allowed according to the current law in South Korea. METHODS:This was a cross-sectional study utilizing a self-report ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719863811]

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Programmed Death 1 Inhibitor-Induced Hypothyroidism on the Palliative Care Unit: Case Report.

Kelvin Lou, Shalini Nayar,

Novel immune-based cancer therapies such as programmed death 1 (PD-1) inhibitors continue to emerge for both curative and palliative intent. Post-market data of PD-1 inhibitors indicate that there are a wide range of side effects associated with these drugs, including ones that have relevance to symptom control and represent a ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719858341]

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Issues Regarding End-of-Life Care in Pakistan: A Review.

Muhammad Mohsin Ali, Muhammad Abbas Khokhar,

J Palliat Care (Journal of palliative care)
[2019, :825859719855953]

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Documentation of Advance Directives and Code Status in Electronic Medical Records to Honor Goals of Care.

Meaghann S Weaver, Betty Anderson, Anne Cole, Maureen E Lyon,

Advance care planning is a process that supports conversations about the values that matter most to patients and their family members. The documentation of advance directives and code status in a patient's electronic health record (EHR) is a critical step to ensure treatment preferences are honored in the medical care ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719860129]

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Longer Duration of Palliative Care in Patients With COPD Is Associated With Death Outside the Hospital.

Valeri Kraskovsky, Jaclyn Schneider, M Jeffery Mador, Karin A Provost,

BACKGROUND:Patients with advanced chronic obstructive pulmonary disease (COPD) have a significant symptom burden despite maximal medical therapy, yet few are referred for concomitant palliative care. OBJECTIVE:To evaluate the utilization and impact of palliative care on the location of death and to identify clinical variables associated with palliative care contact. DESIGN:Retrospective ... Read more >>

J Palliat Care (Journal of palliative care)
[2019, :825859719851486]

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