Full Text Journal Articles by
Author Marisa E Hilliard

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Advancing Transition Medicine for Adolescents and Young Adults with Chronic Conditions.

Sahar S Eshtehardi, Marisa E Hilliard,

J Pediatr Psychol (Journal of pediatric psychology)
[2020, :]

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A Randomized Clinical Trial Assessing Continuous Glucose Monitoring (CGM) Use With Standardized Education With or Without a Family Behavioral Intervention Compared With Finger-stick Blood Glucose Monitoring in Very Young Children With Type 1 Diabetes.

Linda A DiMeglio, Lauren G Kanapka, Daniel J DeSalvo, Marisa E Hilliard, Lori M Laffel, William V Tamborlane, Michelle A Van Name, Stephanie Woerner, Saleh Adi, Anastasia Albanese-O'Neill, G Todd Alonso, Barbara J Anderson, Sarah D Corathers, Kelly Fegan-Bohm, Greg P Forlenza, Rachelle G Gandica, Robin S Goland, Michael J Haller, Anat Hanono, Kara R Harrington, Heba M Ismail, Heather A Jolivette, Jennifer C Kelley, Suzanne Kingery, Sarah A MacLeish, Shideh Majidi, Kellee M Miller, Pantea P Minnock, Brandon M Nathan, Nicole M Sheanon, Jill H Simmons, Muna Sunni, R Paul Wadwa, Sara E Watson, Kate Weyman, Kristen M Williams, Steven M Willi, Kupper A Wintergerst, Jamie Wood, , ,

<h4>Objective</h4>This study evaluated the effects of continuous glucose monitoring (CGM) combined with family behavioral intervention (CGM+FBI) and CGM alone (Standard-CGM) on glycemic outcomes and parental quality of life compared with blood glucose monitoring (BGM) in children ages 2 to <8 years with type 1 diabetes.<h4>Research design and methods</h4>This was a ... Read more >>

Diabetes Care (Diabetes care)
[2020, :]

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Design and Psychometrics for New Measures of Health-Related Quality of Life in Adults with Type 1 Diabetes: Type 1 Diabetes and Life (T1DAL).

Marisa E Hilliard, David G Marrero, Charles G Minard, Viena T Cao, Maartje de Wit, Stephanie N DuBose, Alandra Verdejo, Sarah S Jaser, Davida Kruger, Roshanak Monzavi, Viral N Shah, R Paul Wadwa, Ruth S Weinstock, Debbe Thompson, Barbara J Anderson,

<h4>Aims</h4>To use a three-phase process to develop and validate new self-report measures of diabetes-specific health-related quality of life (HRQOL) for adults with type 1 diabetes. We report on four versions of the Type 1 Diabetes and Life (T1DAL) measure for people age 18-25, 26-45, 46-60, and over 60 years.<h4>Methods</h4>We first ... Read more >>

Diabetes Res Clin Pract (Diabetes research and clinical practice)
[2020, :108537]

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Effectiveness of a Home- and School-Based Asthma Educational Program for Head Start Children With Asthma: A Randomized Clinical Trial.

Michelle N Eakin, Sandra Zaeh, Thomas Eckmann, Elizabeth Ruvalcaba, Cynthia S Rand, Marisa E Hilliard, Kristin A Riekert,

<h4>Importance</h4>Asthma is the most common chronic childhood disease, with Black children experiencing worse morbidity and mortality. It is important to evaluate the effectiveness of efficacious interventions in community settings that have the greatest likelihood of serving at-risk families.<h4>Objective</h4>To evaluate the effectiveness of a multilevel home- and school (Head Start)-based asthma ... Read more >>

JAMA Pediatr (JAMA pediatrics)
[2020, :]

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Defining features of diabetes resilience in emerging adults with type 1 diabetes.

Kyleigh K Skedgell, Viena T Cao, Katherine A Gallagher, Barbara J Anderson, Marisa E Hilliard,

<h4>Background</h4>Emerging adulthood presents unique challenges for type 1 diabetes (T1D) management. Barriers to achieving optimal diabetes outcomes have been studied but less is known about how emerging adults overcome these challenges. Characterizing emerging adults' protective factors may help guide T1D care during this developmental period. We anticipated identifying social, cognitive, ... Read more >>

Pediatr Diabetes (Pediatric diabetes)
[2020, :]

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Barriers and Facilitators to Involvement in Children's Diabetes Management Among Minority Parents.

Ashley M Butler, Marisa E Hilliard, Courtney Titus, Evadne Rodriguez, Iman Al-Gadi, Yasmin Cole-Lewis, Deborah Thompson,

OBJECTIVE:This study aimed to describe parents' perceptions of the factors that facilitate or are barriers to their involvement in children's type 1 diabetes (T1D) management among African American and Latino parents. METHODS:African American and Latino parents (N = 28) of 5- to 9-year-old children with T1D completed audio-recorded, semi-structured interviews that were ... Read more >>

J Pediatr Psychol (Journal of pediatric psychology)
[2020, 45(8):946-956]

Cited: 1 time

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Diabetes distress and HbA1c in racially/ethnically and socioeconomically diverse youth with type 1 diabetes.

Kelly Fegan-Bohm, Charles G Minard, Barbara J Anderson, Ashley M Butler, Courtney Titus, Jill Weissberg-Benchell, Marisa E Hilliard,

<h4>Background</h4>Diabetes distress, the emotional burden of caring for the chronic demands of diabetes, has not been well described in children and preadolescents with type 1 diabetes (T1D). This gap is particularly evident among youth of lower socioeconomic status (SES) and/or racial/ethnic minorities. Since these groups are more likely to have ... Read more >>

Pediatr Diabetes (Pediatric diabetes)
[2020, :]

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Facilitating Transitions to Adulthood in Pediatric Brain Tumor Patients: the Role of Neuropsychology.

Andrew M Heitzer, Douglas Ris, Kimberly Raghubar, Lisa S Kahalley, Marisa E Hilliard, Marsha Gragert,

<h4>Purpose of review</h4>Transition-age patients with history of a pediatric brain tumor are at significant risk for difficulties transitioning to adulthood. We review current transition models and the potential role of neuropsychology in the transition process for adolescent and young adult brain tumor survivors.<h4>Recent findings</h4>Several recently developed healthcare transition models include ... Read more >>

Curr Oncol Rep (Current oncology reports)
[2020, 22(10):102]

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The Role of Parent Self-Regulation in Youth Type 1 Diabetes Management.

Katherine W Bauer, Marisa E Hilliard, Dana Albright, Sharon L Lo, Emily M Fredericks, Alison L Miller,

PURPOSE OF REVIEW:Youth with strong self-regulation (SR), or the ability to manage thoughts, emotions, and behaviors, engage in more effective type 1 diabetes (T1D) management. However, while parent support and engagement are critical to ensuring positive youth T1D outcomes, it is rarely considered that parents' SR may also influence youth ... Read more >>

Curr Diab Rep (Current diabetes reports)
[2020, 20(8):37]

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Type 1 Doing Well: Pilot Feasibility and Acceptability Study of a Strengths-Based mHealth App for Parents of Adolescents with Type 1 Diabetes.

Marisa E Hilliard, Viena T Cao, Sahar S Eshtehardi, Charles G Minard, Rana Saber, Debbe Thompson, Lefkothea P Karaviti, Barbara J Anderson,

<b><i>Background:</i></b> We evaluated the feasibility and acceptability of a pilot behavioral intervention delivered to parents of adolescents with type 1 diabetes (T1D) via mobile-friendly web app. The Type 1 Doing Well app aimed to promote supportive family diabetes management by helping parents recognize and reinforce teens' positive diabetes-related behaviors ("strengths"). ... Read more >>

Diabetes Technol Ther (Diabetes technology & therapeutics)
[2020, 22(11):835-845]

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Assessing Health-Related Quality of Life in Children and Adolescents with Diabetes: Development and Psychometrics of the Type 1 Diabetes and Life (T1DAL) Measures.

Marisa E Hilliard, Charles G Minard, David G Marrero, Maartje de Wit, Debbe Thompson, Stephanie N DuBose, Alandra Verdejo, Roshanak Monzavi, R Paul Wadwa, Sarah S Jaser, Barbara J Anderson,

<h4>Objective</h4>To develop and validate new measures of diabetes-specific health-related quality of life (HRQOL) for people with type 1 diabetes (T1D) that are brief, developmentally appropriate, and usable in clinical research and care. Here we report on the phases of developing and validating the self-report Type 1 Diabetes and Life (T1DAL) ... Read more >>

J Pediatr Psychol (Journal of pediatric psychology)
[2020, 45(3):328-339]

Cited: 1 time

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Society of Pediatric Psychology Workforce Survey: Updated Factors Related to Compensation.

Jessica C Kichler, Jessica Valenzuela, Dave Barker, Amy E Noser, Cheryl L Brosig, Marisa E Hilliard, Peggy Christidis, Karen E Stamm, Tim Wysocki, Elissa Jelalian,

OBJECTIVE:The 2017 Society of Pediatric Psychology (SPP) Workforce Survey provides self-reported compensation by pediatric psychologists, identifies predictors of compensation, and establishes a better understanding of compensation within the context of gender and race/ethnicity minority status. METHODS:SPP members who attended the SPP Annual Conference (SPPAC; April 2017) were invited to complete ... Read more >>

J Pediatr Psychol (Journal of pediatric psychology)
[2020, 45(4):434-444]

Cited: 1 time

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Sources and Valence of Information Impacting Parents' Decisions to Use Diabetes Technologies in Young Children <8 Years Old with Type 1 Diabetes.

Persis V Commissariat, Amanda L Whitehouse, Marisa E Hilliard, Kellee M Miller, Kara R Harrington, Wendy Levy, Daniel J DeSalvo, Michelle A Van Name, Barbara J Anderson, William V Tamborlane, Linda A DiMeglio, Lori M Laffel,

There are multiple information sources available to assist families in learning about rapidly advancing diabetes technologies as care options for their children. This study explored where and from whom families of young children with type 1 diabetes get information about diabetes technologies and the valence (positive vs. negative) of that ... Read more >>

Diabetes Technol Ther (Diabetes technology & therapeutics)
[2020, 22(9):697-700]

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"I'm essentially his pancreas": Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes.

Persis V Commissariat, Kara R Harrington, Amanda L Whitehouse, Kellee M Miller, Marisa E Hilliard, Michelle Van Name, Daniel J DeSalvo, William V Tamborlane, Barbara J Anderson, Linda A DiMeglio, Lori M Laffel,

BACKGROUND:Across all age groups, management of type 1 diabetes (T1D) places substantial responsibility and emotional burden upon families. This study explored parent perceptions of the burdens of caring for very young children with T1D. METHODS:Semi-structured qualitative interviews were conducted with parents (85% mothers) of 79 children with T1D, aged 1 ... Read more >>

Pediatr Diabetes (Pediatric diabetes)
[2020, 21(2):377-383]

Cited: 1 time

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Benefits and Barriers of Continuous Glucose Monitoring in Young Children with Type 1 Diabetes.

Marisa E Hilliard, Wendy Levy, Barbara J Anderson, Amanda L Whitehouse, Persis V Commissariat, Kara R Harrington, Lori M Laffel, Kellee M Miller, Michelle Van Name, William V Tamborlane, Daniel J DeSalvo, Linda A DiMeglio,

<b><i>Background:</i></b> Continuous glucose monitoring (CGM) has potential to address challenges of type 1 diabetes (T1D) management for young children. CGM use is increasing, yet remains underutilized. Characterizing parents' experiences with CGM can inform clinical strategies to help parents make decisions about diabetes management, overcome obstacles to initiating and sustaining CGM ... Read more >>

Diabetes Technol Ther (Diabetes technology & therapeutics)
[2019, 21(9):493-498]

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Assessing strengths of children with type 1 diabetes: Validation of the Diabetes Strengths and Resilience (DSTAR) measure for ages 9 to 13.

Esti Iturralde, Korey K Hood, Jill Weissberg-Benchell, Barbara J Anderson, Marisa E Hilliard,

<h4>Background</h4>Adaptive diabetes-specific attitudes and behaviors, known as diabetes strengths, relate to positive self-management and quality of life outcomes in type 1 diabetes (T1D), but have not been studied in preadolescence. To facilitate strengths-based care and research on this topic, we developed and evaluated the psychometric properties of a measure of ... Read more >>

Pediatr Diabetes (Pediatric diabetes)
[2019, 20(7):1007-1015]

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Diabetes disclosure strategies in adolescents and young adult with type 1 diabetes.

Andrea K Pihlaskari, Barbara J Anderson, Sahar S Eshtehardi, Brett M McKinney, David G Marrero, Debbe Thompson, Marisa E Hilliard,

<h4>Objective</h4>Adolescence and young adulthood have social and developmental challenges that can impact type 1 diabetes (T1D) management. New relationships (e.g. friends, schoolmates, dating partners, teachers, employers) introduce opportunities for disclosure of T1D status. Characterizing how adolescents and young adults (AYAs) disclose having T1D to others may help inform clinical strategies ... Read more >>

Patient Educ Couns (Patient education and counseling)
[2020, 103(1):208-213]

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Psychometric Properties of the Parent and Child Problem Areas in Diabetes Measures.

Meredyth A Evans, Lindsey E G Weil, Jenna B Shapiro, Lindsay M Anderson, Anthony T Vesco, Karen Rychlik, Marisa E Hilliard, Jeanne Antisdel, Jill Weissberg-Benchell,

OBJECTIVE:Children with type 1 diabetes and their parents face daily self-care demands, leading to diabetes-specific emotional distress. A standardized measure of diabetes distress can guide clinical care and prevent negative outcomes. METHODS:This study evaluated the psychometric properties of child- and parent-report measures of the Problem Areas in Diabetes Scale, adapted ... Read more >>

J Pediatr Psychol (Journal of pediatric psychology)
[2019, 44(6):703-713]

Cited: 1 time

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Medical and Psychological Considerations for Carbohydrate-Restricted Diets in Youth With Type 1 Diabetes.

Katherine A S Gallagher, Daniel DeSalvo, Justin Gregory, Marisa E Hilliard,

<h4>Purpose of review</h4>Given the challenges achieving recommended glycemic targets in youth with type 1 diabetes (T1D), providers may consider recommending carbohydrate-restricted diets (CRDs) to optimize glycemic control. The goal of the present review is to describe relevant literature on the potential medical and psychosocial benefits and risks of CRDs in ... Read more >>

Curr Diab Rep (Current diabetes reports)
[2019, 19(6):27]

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Using patient reported outcomes in diabetes research and practice: Recommendations from a national workshop.

David G Marrero, Marisa E Hilliard, David M Maahs, Alicia H McAuliffe-Fogarty, Christine M Hunter,

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the American Diabetes Association (ADA) Co-Sponsored the workshop, Using Patient Reported Outcomes in Diabetes Research and Practice. The goal of the workshop was to identify PRO research priorities for those living with type 1 or type 2 diabetes, ... Read more >>

Diabetes Res Clin Pract (Diabetes research and clinical practice)
[2019, 153:23-29]

Cited: 1 time

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Longitudinal Changes in Depression Symptoms and Glycemia in Adults With Type 1 Diabetes.

Paula M Trief, Nicole C Foster, Naomi Chaytor, Marisa E Hilliard, Julie M Kittelsrud, Sarah S Jaser, Shideh Majidi, Sarah D Corathers, Suzan Bzdick, Deanna W Adkins, Ruth S Weinstock,

<h4>Objective</h4>This study assessed longitudinal change in depression symptoms over ≥4 years in adults with type 1 diabetes and examined the association between change in depression symptom status and glycemia.<h4>Research design and methods</h4>Adults in the T1D Exchange registry with HbA<sub>1c</sub> and Patient Health Questionnaire (PHQ-8) at 1 year (baseline) and 5 ... Read more >>

Diabetes Care (Diabetes care)
[2019, 42(7):1194-1201]

Cited: 2 times

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JPP Student Journal Club Commentary: Considerations on Depression, Distress, and Resilience in Parents of Children With Chronic Health Conditions.

Rachel A Kentor, Marisa E Hilliard,

J Pediatr Psychol (Journal of pediatric psychology)
[2019, 44(2):150-152]

Cited: 0 times

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Featured Article: Strengths-Based, Clinic-Integrated Nonrandomized Pilot Intervention to Promote Type 1 Diabetes Adherence and Well-Being.

Marisa E Hilliard, Sahar S Eshtehardi, Charles G Minard, Suzanne Wheat, Sheila Gunn, Cynthia Sanders, Robyn Klenk, Barbara J Anderson,

<h4>Objective</h4>Given persistent challenges achieving optimal diabetes outcomes in adolescence, new interventions to support disease self-management and emotional well-being are needed. Approaches that emphasize adolescents' positive behaviors and attitudes ("strengths") are designed to incorporate positive provider communications into clinical encounters to encourage youths' engagement in adherence behaviors and enhance well-being.<h4>Methods</h4>This pilot ... Read more >>

J Pediatr Psychol (Journal of pediatric psychology)
[2019, 44(1):5-15]

Cited: 1 time

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ISPAD Clinical Practice Consensus Guidelines 2018: Psychological care of children and adolescents with type 1 diabetes.

Alan M Delamater, Maartje de Wit, Vincent McDarby, Jamil A Malik, Marisa E Hilliard, Elisabeth Northam, Carlo L Acerini,

Pediatr Diabetes (Pediatric diabetes)
[2018, 19 Suppl 27:237-249]

Cited: 7 times

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Identifying and addressing gaps in reproductive health education for adolescent girls with type 1 diabetes.

Jaden R Kohn, Marisa E Hilliard, Sarah K Lyons, Karin A Fox, Jake A Kushner,

<h4>Aims</h4>Adolescent girls with diabetes are at risk for adverse pregnancy outcomes due to age, risk-taking behavior, poor glycemic control, and lack of knowledge. Our aims were to assess attitudes and behaviors related to reproductive health education (RHE) among diabetes healthcare providers and adolescent girls with diabetes, and to pilot a ... Read more >>

PLoS One (PloS one)
[2018, 13(11):e0206102]

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