Full Text Journal Articles by
Author Kofi A Anie

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Racial inequalities in access to care for young people living with pain due to sickle cell disease.

Baba Psalm Duniya Inusa, Eufemia Jacob, Livingstone Dogara, Kofi A Anie,

Lancet Child Adolesc Health (The Lancet. Child & adolescent health)
[2020, :]

Cited: 0 times

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Real-time national survey of COVID-19 in hemoglobinopathy and rare inherited anemia patients.

Paul Telfer, Josu De la Fuente, Mamta Sohal, Ralph Brown, Perla Eleftheriou, Noémi Roy, Frédéric B Piel, Subarna Chakravorty, Kate Gardner, Mark Velangi, Emma Drasar, Farrukh Shah, John B Porter, Sara Trompeter, Wale Atoyebi, Richard Szydlo, Kofi A Anie, Kate Ryan, Joseph Sharif, Josh Wright, Emma Astwood, C Sarah Nicolle, Amy Webster, David J Roberts, Sanne Lugthart, Banu Kaya, Moji Awogbade, David C Rees, Rob Hollingsworth, Baba Inusa, Jo Howard, D Mark Layton,

Haematologica (Haematologica)
[2020, 105(11):]

Cited: 0 times

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Treatments for priapism in boys and men with sickle cell disease.

Francis I Chinegwundoh, Sherie Smith, Kofi A Anie,

BACKGROUND:Sickle cell disease comprises a group of genetic haemoglobin disorders. The predominant symptom associated with sickle cell disease is pain resulting from the occlusion of small blood vessels by abnormally 'sickle-shaped' red blood cells. There are other complications, including chronic organ damage and prolonged painful erection of the penis, known ... Read more >>

Cochrane Database Syst Rev (The Cochrane database of systematic reviews)
[2020, 4:CD004198]

Cited: 1 time

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Sickle Cell Disease-Genetics, Pathophysiology, Clinical Presentation and Treatment.

Baba P D Inusa, Lewis L Hsu, Neeraj Kohli, Anissa Patel, Kilali Ominu-Evbota, Kofi A Anie, Wale Atoyebi,

Sickle cell disease (SCD) is a monogenetic disorder due to a single base-pair point mutation in the β-globin gene resulting in the substitution of the amino acid valine for glutamic acid in the β-globin chain. Phenotypic variation in the clinical presentation and disease outcome is a characteristic feature of the ... Read more >>

Int J Neonatal Screen (International journal of neonatal screening)
[2019, 5(2):20]

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Utilising the 'Getting to Outcomes®' Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria.

Baba P D Inusa, Kofi A Anie, Andrea Lamont, Livingstone G Dogara, Bola Ojo, Ifeoma Ijei, Wale Atoyebi, Larai Gwani, Esther Gani, Lewis Hsu,

BACKGROUND:Sickle Cell Disease (SCD) has been designated by WHO as a public health problem in sub-Saharan Africa, and the development of newborn screening (NBS) is crucial to the reduction of high SCD morbidity and mortality. Strategies from the field of implementation science can be useful for supporting the translation of ... Read more >>

Int J Neonatal Screen (International journal of neonatal screening)
[2018, 4(4):33]

Cited: 0 times

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Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.

Jemima A Dennis-Antwi, Kwaku Ohene-Frempong, Kofi A Anie, Helen Dzikunu, Veronica A Agyare, Richard Okyere Boadu, Joseph Sarfo Antwi, Mabel K Asafo, Oboshie Anim-Boamah, Augustine K Asubonteng, Solomon Agyei, Ambroise Wonkam, Marsha J Treadwell,

Sickle cell disease (SCD) is highly prevalent in Africa with a significant public health burden for under-resourced countries. We employed qualitative research methods to understand the ethical, legal, and social implications of conducting genomic research in SCD under the Human Heredity and Health in Africa (H3Africa) initiative. The present study ... Read more >>

J Genet Couns (Journal of genetic counseling)
[2018, :]

Cited: 2 times

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Organ damage in sickle cell disease study (ORDISS): protocol for a longitudinal cohort study based in Ghana.

Kofi A Anie, Vivian Paintsil, Ellis Owusu-Dabo, Daniel Ansong, Alex Osei-Akoto, Kwaku Ohene-Frempong, Kofi Aikins Amissah, Nicholas Addofoh, Ezekiel Bonwin Ackah, Amma Twumwa Owusu-Ansah, Solomon Fiifi Ofori-Acquah,

INTRODUCTION:Sickle cell disease is highly prevalent in Africa with a significant public health burden. Nonetheless, morbidity and mortality in sickle cell disease that result from the progression of organ damage is not well understood. The Organ Damage in Sickle Cell Disease Study (ORDISS) is designed as a longitudinal cohort study ... Read more >>

BMJ Open (BMJ open)
[2017, 7(8):e016727]

Cited: 0 times

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Treatments for priapism in boys and men with sickle cell disease.

Francis I Chinegwundoh, Sherie Smith, Kofi A Anie,

BACKGROUND:Sickle cell disease comprises a group of genetic haemoglobin disorders. The predominant symptom associated with sickle cell disease is pain resulting from the occlusion of small blood vessels by abnormally 'sickle-shaped' red blood cells. There are other complications, including chronic organ damage and prolonged painful erection of the penis, known ... Read more >>

Cochrane Database Syst Rev (The Cochrane database of systematic reviews)
[2017, 9:CD004198]

Cited: 1 time

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SWIM (sickle with ibuprofen and morphine) randomised controlled trial fails to recruit: lessons learnt.

Gavin Cho, Kofi A Anie, Jacky Buckton, Patricia Kiilu, Mark Layton, Lydia Alexander, Claire Hemmaway, Dorothy Sutton, Claire Amos, Caroline J Doré, Brennan Kahan, Sarah Meredith,

OBJECTIVES:Sickle With Ibuprofen and Morphine (SWIM) trial was designed to assess whether co-administration of ibuprofen (a non-steroidal anti-inflammatory drug) resulted in a reduction of opioid consumption delivered by patient-controlled analgesia (PCA) for acute pain in sickle cell disease. DESIGN:A randomised, placebo-controlled, double-blind trial. SETTING:UK multicentre trial in acute hospital setting. ... Read more >>

BMJ Open (BMJ open)
[2016, 6(6):e011276]

Cited: 1 time

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Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana.

Kofi A Anie, Marsha J Treadwell, Althea M Grant, Jemima A Dennis-Antwi, Mabel K Asafo, Mary E Lamptey, Jelili Ojodu, Careema Yusuf, Ayo Otaigbe, Kwaku Ohene-Frempong,

Sickle cell disease (SCD) and sickle cell trait (SCT) are highly prevalent in Africa. Despite public health implications, there is limited understanding of community issues for implementing newborn screening and appropriate family counseling. We conducted a 3-day workshop in Kumasi, Ghana, with community leaders as lay program development advisors to ... Read more >>

(Journal of community genetics)
[2016, 7(3):195-202]

Cited: 4 times

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Proceedings of a Sickle Cell Disease Ontology workshop - Towards the first comprehensive ontology for Sickle Cell Disease.

Nicola Mulder, Victoria Nembaware, Adekunle Adekile, Kofi A Anie, Baba Inusa, Biobele Brown, Andrew Campbell, Furahini Chinenere, Catherine Chunda-Liyoka, Vimal K Derebail, Amy Geard, Kais Ghedira, Carol M Hamilton, Neil A Hanchard, Melissa Haendel, Wayne Huggins, Muntaser Ibrahim, Simon Jupp, Karen Kengne Kamga, Jennifer Knight-Madden, Philomène Lopez-Sall, Mamana Mbiyavanga, Deogratias Munube, Damian Nirenberg, Obiageli Nnodu, Solomon Fiifi Ofori-Acquah, Kwaku Ohene-Frempong, Kenneth Babu Opap, Sumir Panji, Miriam Park, Gift Pule, Charmaine Royal, Raphael Sangeda, Bamidele Tayo, Marsha Treadwell, Léon Tshilolo, Ambroise Wonkam,

Sickle cell disease (SCD) is a debilitating single gene disorder caused by a single point mutation that results in physical deformation (i.e. sickling) of erythrocytes at reduced oxygen tensions. Up to 75% of SCD in newborns world-wide occurs in sub-Saharan Africa, where neonatal and childhood mortality from sickle cell related ... Read more >>

(Applied & translational genomics)
[2016, 9:23-29]

Cited: 3 times

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Psychological therapies for sickle cell disease and pain.

Kofi A Anie, John Green,

BACKGROUND:Sickle cell disease comprises a group of genetic blood disorders. It occurs when the sickle haemoglobin gene is inherited from both parents. The effects of the condition are: varying degrees of anaemia which, if severe, can reduce mobility; a tendency for small blood capillaries to become blocked causing pain in ... Read more >>

Cochrane Database Syst Rev (The Cochrane database of systematic reviews)
[2015, (5):CD001916]

Cited: 7 times

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Using formative research to develop a counselor training program for newborn screening in Ghana.

Marsha J Treadwell, Kofi A Anie, Althea M Grant, Solomon F Ofori-Acquah, Kwaku Ohene-Frempong,

Sickle cell disease (SCD), sickle cell trait (SCT) and related conditions are highly prevalent in sub-Saharan Africa. Despite the public health implications, there is limited understanding of the unique needs regarding establishing and implementing extensive screening for newborns and appropriate family counseling. We sought to gain understanding of community attitudes ... Read more >>

J Genet Couns (Journal of genetic counseling)
[2015, 24(2):267-277]

Cited: 9 times

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Psychological therapies for thalassaemia.

Kofi A Anie, Pia Massaglia,

BACKGROUND:Thalassaemia is a group of genetic blood disorders characterised by the absence or reduction in the production of haemoglobin. Severity is variable from less severe anaemia, through thalassaemia intermedia, to profound severe anaemia (thalassaemia major). In thalassaemia major other complications include growth retardation, bone deformation, and enlarged spleen. Blood transfusion ... Read more >>

Cochrane Database Syst Rev (The Cochrane database of systematic reviews)
[2014, (3):CD002890]

Cited: 3 times

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The association between tricuspid regurgitation velocity and 5-year survival in a North West London population of patients with sickle cell disease in the United Kingdom.

Inês Zimbarra Cabrita, Abubakar Mohammed, Mark Layton, Sara Ghorashian, Annette Gilmore, Gavin Cho, Jo Howard, Kofi A Anie, Lynda Desforges, Paul Bassett, Julia Grapsa, Luke Howard, Gaia Mahalingam, David Dawson, Fausto J Pinto, Petros Nihoyannopoulos, Sally C Davies, J Simon R Gibbs,

Raised tricuspid regurgitant velocity (TRV) occurs in approximately 30% of adults with sickle cell disease (SCD), and has been shown to be an independent risk factor for death. TRV was assessed in 164 SCD patients who were subsequently followed up for survival. Raised pulmonary pressures were defined as a TRV ... Read more >>

Br. J. Haematol. (British journal of haematology)
[2013, 162(3):400-408]

Cited: 14 times

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Patient self-assessment of hospital pain, mood and health-related quality of life in adults with sickle cell disease.

Kofi A Anie, Hannah Grocott, Lauren White, Mendwas Dzingina, Gabriel Rogers, Gavin Cho,

Acute pain is a hallmark of sickle cell disease (SCD) for which frequent hospital admissions may be required, affecting the quality of life of patients.To characterise the relationship between adult patient self-reported sickle cell pain, mood and quality of life during and after hospital admissions.Longitudinal study across three time-points.Secondary care, ... Read more >>

BMJ Open (BMJ open)
[2012, 2(4):]

Cited: 10 times

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Psychological therapies for sickle cell disease and pain.

Kofi A Anie, John Green,

Sickle cell disease comprises a group of genetic blood disorders. It occurs when the sickle haemoglobin gene is inherited from both parents. The effects of the condition are: varying degrees of anaemia which, if severe, can reduce mobility; a tendency for small blood capillaries to become blocked causing pain in ... Read more >>

Cochrane Database Syst Rev (The Cochrane database of systematic reviews)
[2012, (2):CD001916]

Cited: 11 times

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Silent cerebral infarcts occur despite regular blood transfusion therapy after first strokes in children with sickle cell disease.

Monica L Hulbert, Robert C McKinstry, JoAnne L Lacey, Christopher J Moran, Julie A Panepinto, Alexis A Thompson, Sharada A Sarnaik, Gerald M Woods, James F Casella, Baba Inusa, Jo Howard, Fenella J Kirkham, Kofi A Anie, Jonathan E Mullin, Rebecca Ichord, Michael Noetzel, Yan Yan, Mark Rodeghier, Michael R Debaun,

Children with sickle cell disease (SCD) and strokes receive blood transfusion therapy for secondary stroke prevention; despite this, approximately 20% experience second overt strokes. Given this rate of second overt strokes and the clinical significance of silent cerebral infarcts, we tested the hypothesis that silent cerebral infarcts occur among children ... Read more >>

Blood (Blood)
[2011, 117(3):772-779]

Cited: 110 times

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Psychosocial impact of sickle cell disorder: perspectives from a Nigerian setting.

Kofi A Anie, Feyijimi E Egunjobi, Olu O Akinyanju,

Sickle Cell Disorder is a global health problem with psychosocial implications. Nigeria has the largest population of people with sickle cell disorder, with about 150,000 births annually. This study explored the psychosocial impact of sickle cell disorder in 408 adolescents and adults attending three hospitals in Lagos, Nigeria. A questionnaire ... Read more >>

Global Health (Globalization and health)
[2010, 6:2]

Cited: 32 times

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A cross-cultural study of psychosocial aspects of sickle cell disease in the UK and Nigeria.

Kofi A Anie, Tanya Dasgupta, Pauline Ezenduka, Agnes Anarado, Ifoema Emodi,

Pain experience, health service utilization and psychological coping in adult patients with sickle cell disease were compared cross-culturally between the UK and Nigeria. Patients in the UK experienced a significantly greater number of pain episodes and of longer duration, with more frequent visits to accident and emergency departments compared with ... Read more >>

Psychol Health Med (Psychology, health & medicine)
[2007, 12(3):299-304]

Cited: 8 times

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Cannabis use in sickle cell disease: a questionnaire study.

Jo Howard, Kofi A Anie, Anita Holdcroft, Simon Korn, Sally C Davies,

Cannabinoids are increasingly being considered for the management of various painful conditions, and could be considered as an option for treating acute pain in sickle cell disease (SCD). The objective of this study was to determine the extent of use of cannabis in the community for pain and other symptom ... Read more >>

Br. J. Haematol. (British journal of haematology)
[2005, 131(1):123-128]

Cited: 24 times

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Multi-site study of transition in adolescents with sickle cell disease in the United Kingdom and the United States.

Kofi A Anie, Joseph Telfair, ,

Adolescents with sickle cell disease may have problems of adjustment during the phase of transition from pediatric to adult health care. It is important to identify factors that may help in the development of appropriate interventions. We were interested in possible similarities, in terms of adjustment to transition in two ... Read more >>

Int J Adolesc Med Health (International journal of adolescent medicine and health)
[2005, 17(2):169-178]

Cited: 22 times

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Psychological complications in sickle cell disease.

Kofi A Anie,

This review examines the evidence for some of the common psychological complications found across the life span of patients with sickle cell disease (SCD), which are likely to be encountered by haematologists responsible for their medical management. Electronic searches of medical and psychological databases were conducted with a focus on ... Read more >>

Br. J. Haematol. (British journal of haematology)
[2005, 129(6):723-729]

Cited: 50 times

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Pain, mood and opioid medication use in sickle cell disease.

Kofi A Anie, Andrew Steptoe,

Patients with sickle cell disease show wide variations in their experience of pain, and in the impact of pain on everyday functioning. This study examined relations between pain, mood, physical activity, and medication use in a longitudinal naturalistic self-monitoring study of 21 adult sickle cell patients over 12 months. Results ... Read more >>

Hematol. J. (The hematology journal : the official journal of the European Haematology Association)
[2003, 4(1):71-73]

Cited: 14 times

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