Full Text Journal Articles by
Author Jochen Schmitt

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The Interdisciplinary Diagnosis of Rare Diseases-Results of the Translate-NAMSE Project.

Franziska Rillig, Annette Grüters, Tobias Bäumer, Georg F Hoffmann, Daniela Choukair, Reinhard Berner, Min Ae Lee-Kirsch, Martin Mücke, Corinna Grasemann, Annekatrin Ripke, Lena Zeltner, Gabriele Müller, Monika Glauch, Holm Graessner, Fabian Hauck, Christoph Klein, Markus M Nöthen, Olaf Riess, Stefan Mundlos, Thomas Meitinger, Tobias Kurt, Kerstin L Wainwright, Jochen Schmitt, Christoph Schramm, Heiko Krude,

<h4>Background</h4>Patients with rare diseases often undergo a diagnostic odyssey that can last many years until the diagnosis is definitively established. To improve the diagnosis and treatment of these patients, the German National Task Force for Patients With Rare Diseases (Nationales Aktionsbündnis für Menschen mit Seltenen Erkrankungen, NAMSE) has recommended the ... Read more >>

Dtsch Arztebl Int (Deutsches Arzteblatt international)
[2022, (Forthcoming):arztebl.m2022.0219]

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Transferability of health-related quality of life data of large observational studies to clinical practice - comparing retroperitoneal sarcoma patients from the PROSa study to a TARPS-WG cohort.

Jens Jakob, Leopold Hentschel, Stephan Richter, Inga Kreisel, Peter Hohenberger, Bernd Kasper, Dimosthenis Andreou, Daniel Pink, Jochen Schmitt, Markus K Schuler, Martin Eichler,

<h4>Introduction</h4>Health-Related Quality of Life (HRQoL) is crucial for shared decision-making. The "Patient-Reported Outcome measures in Sarcoma" (PROSa) study evaluated HRQoL in general. We evaluated the transferability of PROSa data to clinical practice for the subgroup of retroperitoneal sarcoma (RPS).<h4>Methods</h4>To obtain a PROSa-RPS cohort we excluded patients with bone sarcomas and ... Read more >>

Oncol Res Treat (Oncology research and treatment)
[2022, :]

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