Full Text Journal Articles by
Author Eufemia Jacob

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Racial inequalities in access to care for young people living with pain due to sickle cell disease.

Baba Psalm Duniya Inusa, Eufemia Jacob, Livingstone Dogara, Kofi A Anie,

Lancet Child Adolesc Health (The Lancet. Child & adolescent health)
[2020, :]

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Pain Experience, Physical Function, Pain Coping, and Catastrophizing in Children With Sickle Cell Disease Who Had Normal and Abnormal Sensory Patterns.

Octavia Hyacinth, Fernanda Machado Silva-Rodrigues, Michelle Darezzo Rodrigues Nunes, Luís Carlos Lopes, Ananda Fernandes, Lucila Castanheira Nascimento, Eufemia Jacob,

CONTEXT:Sickle cell disease (SCD) is associated with recurrent pain that could lead to abnormal sensory patterns (ASPs). OBJECTIVES:The purpose of this study is to compare children with SCD who had normal sensory patterns (NSPs) and ASPs in pain experience, physical function, pain coping, and pain catastrophizing. METHODS:Children with quantitative sensory ... Read more >>

J Pain Symptom Manage (Journal of pain and symptom management)
[2020, 60(6):1079-1091]

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Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity.

Lilian Bravo, Mary K Killela, Beck L Reyes, Karla Marie Bathan Santos, Vanessa Torres, Chai-Chih Huang, Eufemia Jacob,

INTRODUCTION:Children with chronic illnesses and medical complexity (CIMC) require frequent health-care use, thereby increasing medical care costs. We evaluated parent-child perceptions of self-management, self-efficacy, and health-related quality of life (HRQOL) in children with CIMC. METHOD:Parent-children pairs (n = 32) completed three measures before discharge from the hospital (Patient Activation Measure, Self-Efficacy Scale, ... Read more >>

J Pediatr Health Care (Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners)
[2020, 34(4):304-314]

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Parent Educational Intervention Program for Improving Parental Knowledge, Self-efficacy and Health Related Quality of life in Children with Sickle Cell Disease Using Smartphone Technology: A Randomized Controlled Trial

YUSRA AL NASIRI, Eufemia Jacob, Eunice Lee, Adey Nyamathi, Mary-Lynn Brecht, Wendie Robbins, Adhra Al Mawali,

Abstract Background Sickle cell disease (SCD) is a genetic blood disorder that increases the risk for recurrent painful episodes. Parents’ knowledge regarding SCD management is poor, leading to poor symptom management and lower Health Related Quality of Life (HRQOL) in children with SCD. The purpose of this study was to ... Read more >>

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Quality of Life and Pain Experienced by Children and Adolescents With Cancer at Home Following Discharge From the Hospital.

Joana Duran, Lilian Bravo, Vanessa Torres, Alexandra Craig, Jasmine Heidari, Kathleen Adlard, Rita Secola, Renee Granados, Eufemia Jacob,

An exploratory study was conducted to examine the quality of life and pain experienced by patients with pediatric cancer at home after discharge. Physical, cognitive, social, and emotional aspects of quality of life were measured and how these may be affected by age, sex, diagnosis, and pain status. The authors ... Read more >>

J. Pediatr. Hematol. Oncol. (Journal of pediatric hematology/oncology)
[2020, 42(1):46-52]

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Multi-level Intervention Program - A Quality Improvement Initiative to Decrease Central Line-Associated Bloodstream Infections in the Pediatric Acute and Hematology/Oncology Units.

Karla Marie Bathan Santos, Sufia S Husain, Vanessa Torres, Chai-Chih Huang, Eufemia Jacob,

INTRODUCTION:Central Venous Catheters (CVCs) are placed in pediatric patients that require frequent and/or long-term access for intravenous treatments and increase the risk for Central line-associated bloodstream infections (CLABSIs). The specific aims of the study were to evaluate adherence to the intervention components and rates of Central Line Associated Bloodstream Infections ... Read more >>

J Pediatr Nurs (Journal of pediatric nursing)
[2019, 48:106-113]

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Prevention of Morbidity in Sickle Cell Disease (POMS2a)-overnight auto-adjusting continuous positive airway pressure compared with nocturnal oxygen therapy: a randomised crossover pilot study examining patient preference and safety in adults and children.

Jo Howard, Sophie A Lee, Baba Inusa, Man Ying Edith Cheng, Cheema Bavenjit, Isabel C Reading, Sally Ann Wakeford, Johanna C Gavlak, Patrick B Murphy, Nicholas Hart, Atul Gupta, Sati Sahota, Eufemia Jacob, Maria Chorozoglou, Carol Ossai, Maureen Gwam, Fenella J Kirkham, Angela M Wade, Christina Liossi,

DESIGN:This randomised crossover trial compared nocturnal auto-adjusting continuous positive airway pressure (APAP) and nocturnal oxygen therapy (NOT) in adults and children with sickle cell anaemia, with patient acceptability as the primary outcome. Secondary outcomes included pulmonary physiology (adults), safety, and daily pain during interventions and washout documented using tablet technology. ... Read more >>

Trials (Trials)
[2019, 20(1):442]

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Frequency, Severity, and Distress Associated With Physical and Psychosocial Symptoms at Home in Children and Adolescents With Cancer.

Vanessa Torres, Michelle Darezzo Rodrigues Nunes, Fernanda Machado Silva-Rodrigues, Lilian Bravo, Kathleen Adlard, Rita Secola, Ananda Maria Fernandes, Lucila Castanheira Nascimento, Eufemia Jacob,

Malignancy- and cancer-related treatments lead to multiple symptoms. Although treatments focus on cure, few research studies have examined the symptoms that accompany these aggressive and complicated treatments. The purpose of the study was to evaluate the symptoms experienced by children at home. Children (n = 25) and adolescents (n = 33) diagnosed with cancer ... Read more >>

J Pediatr Health Care (Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners)
[2019, 33(4):404-414]

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Pain, sleep patterns and health-related quality of life in paediatric patients with cancer.

Michelle Darezzo Rodrigues Nunes, Lucila Castanheira Nascimento, Ananda Maria Fernandes, Luis Batalha, Catarina De Campos, Ana Gonçalves, Ana Carolina Andrade Biaggi Leite, Willyane de Andrade Alvarenga, Regina Aparecida Garcia de Lima, Eufemia Jacob,

PURPOSE:To compare sleep and health-related quality of life (HRQOL) in children and adolescents with cancer who had pain, with those who had no pain during hospitalisation. METHOD:A prospective comparative study was used to collect data from paediatric oncology units in three countries (Portugal, Brazil, USA). Participants (n = 118; 8-18 years) completed the ... Read more >>

Eur J Cancer Care (Engl) (European journal of cancer care)
[2019, 28(4):e13029]

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Cultural adaptation of the Adolescent Pediatric Pain Tool in Turkish children with cancer.

Gülçin Özalp Gerçeker, Elif Bilsin, Şeyda Binay, Hatice Bal Yılmaz, Eufemia Jacob,

PURPOSE:Pain is very common among pediatric cancers. This study aimed to assess the reliability and validity of the Turkish version of the Adolescent Pediatric Pain Tool (APPT). METHODS:In this methodological study, language validity and content validity of the words in the third section of the scale, which was administered to ... Read more >>

Eur J Oncol Nurs (European journal of oncology nursing : the official journal of European Oncology Nursing Society)
[2018, 34:28-34]

Cited: 1 time

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Eating Behaviors, Weight Bias, and Psychological Functioning in Multi-ethnic Low-income Adolescents.

Rana Halabi Najjar, Eufemia Jacob, Lorraine Evangelista,

The purposes of this study were to: 1) Describe the incidence of disordered eating, weight bias, body dissatisfaction, and psychological distress, 2) Examine the relationship between sociodemographic variables (gender, ethnicity, and income) and disordered eating, weight bias, body dissatisfaction, and psychological distress in a sample of low-income adolescents.A cross-sectional study ... Read more >>

J Pediatr Nurs (Journal of pediatric nursing)
[2018, 38:81-87]

Cited: 1 time

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Barriers to care and quality of primary care services in children with sickle cell disease.

Eufemia Jacob, Courtney Childress, Joana Duran Nathanson,

AIMS:The aims of this study were: to (1) identify barriers to care in children with sickle cell disease; (2) examine the quality of primary care services received by these children and (3) examine the relationship between barriers to care and quality of primary care services in children with sickle cell ... Read more >>

J Adv Nurs (Journal of advanced nursing)
[2016, 72(6):1417-1429]

Cited: 3 times

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Fatigue and health related quality of life in children and adolescents with cancer.

Michelle Darezzo Rodrigues Nunes, Eufemia Jacob, Emiliana Omena Bomfim, Luis Carlos Lopes-Junior, Regina Aparecida Garcia de Lima, Milena Floria-Santos, Lucila Castanheira Nascimento,

The study examined the different dimensions of fatigue (general, sleep/rest, cognitive), health related quality of life (HRQL) (physical, emotional, cognitive, social), and the relationships between fatigue and HRQL in hospitalized children and adolescents with cancer in Brazil.Participants were recruited from a pediatric oncology inpatient unit in a comprehensive cancer care ... Read more >>

Eur J Oncol Nurs (European journal of oncology nursing : the official journal of European Oncology Nursing Society)
[2017, 29:39-46]

Cited: 3 times

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Depression, Anxiety, and Quality of Life In Children and Adolescents With Sickle Cell Disease.

J Kelly Graves, Christopher Hodge, Eufemia Jacob,

The relationships among depression, anxiety, and quality of life were tested, as were the effects of age, gender, and pain frequency on these variables in children (n = 44) and adolescents (n = 31) with sickle cell disease. Participants completed the Revised Child Anxiety and Depression Scale (ROADS) and the ... Read more >>

Pediatr Nurs (Pediatric nursing)
[2016, 42(3):113-9, 144]

Cited: 9 times

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Fatigue and Sleep Experiences at Home in Children and Adolescents With Cancer.

Michelle Darezzo Rodrigues Nunes, Eufemia Jacob, Kathleen Adlard, Rita Secola, Lucila Nascimento,

To (a) investigate fatigue and sleep patterns of children and adolescents at home and (b) examine factors associated with fatigue and sleep..Descriptive with repeated measures
.Homes of study participants in Los Angeles and Orange, California
.35 children and adolescents with cancer.Data were collected using the PedsQL Multidimensional Fatigue Scale, which was completed ... Read more >>

Oncol Nurs Forum (Oncology nursing forum)
[2015, 42(5):498-506]

Cited: 6 times

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Diffusion Tensor Imaging and Neurobehavioral Outcome in Children With Brain Tumors Treated With Chemotherapy.

Mary Baron Nelson, Peggy Compton, Paul M Macey, Sunita K Patel, Eufemia Jacob, Sharon O'Neil, Jennifer Ogren, Jonathan L Finlay, Ronald M Harper,

Childhood brain tumor survivors (CBTS) often experience treatment-related neurocognitive deficits affecting quality of life (QOL), but systemic chemotherapy contributions to outcomes are unclear. Our objective was to relate brain tissue changes to neurocognitive and QOL effects after systemic myeloablative chemotherapy with autologous hematopoietic progenitor cell rescue in CBTS.Regional brain volumes ... Read more >>

J Pediatr Oncol Nurs (Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses)
[2016, 33(2):119-128]

Cited: 2 times

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What Is It Like to Be a Child with Type 1 Diabetes Mellitus?

Valéria de Cássia Sparapani, Eufemia Jacob, Lucila Castanheira Nascimento,

Diabetes mellitus is a complex disease that requires significant changes in lifestyle upon diagnosis, which may be difficult for children because of differences in growth and developmental levels. The purpose of this study was to increase our understanding of "what it is like" to be a child with type 1 ... Read more >>

Pediatr Nurs (Pediatric nursing)
[2015, 41(1):17-22]

Cited: 10 times

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Prevention of Morbidity in sickle cell disease--qualitative outcomes, pain and quality of life in a randomised cross-over pilot trial of overnight supplementary oxygen and auto-adjusting continuous positive airways pressure (POMS2a): study protocol for a randomised controlled trial.

Jo Howard, Baba Inusa, Christina Liossi, Eufemia Jacob, Patrick B Murphy, Nicholas Hart, Johanna Gavlak, Sati Sahota, Maria Chorozoglou, Carol Nwosu, Maureen Gwam, Atul Gupta, David C Rees, Swee Lay Thein, Isabel C Reading, Fenella J Kirkham, Man Yeung Edith Cheng,

Sickle cell anaemia (SCA) is an inherited disorder of haemoglobin. Patients experience long-term health care problems, affecting quality of life (QOL) including frequent acute pain, which is difficult to document in trials except as hospital admissions. Pilot data suggests that overnight respiratory support, either supplementary oxygen or auto-adjusting continuous positive ... Read more >>

Trials (Trials)
[2015, 16:376]

Cited: 6 times

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Sensory and Thermal Quantitative Testing in Children With Sickle Cell Disease.

Eufemia Jacob, Victoria Wong Chan, Christopher Hodge, Lonnie Zeltzer, David Zurakowski, Navil F Sethna,

Very little is known about pain processing in sickle cell disease (SCD). We examined the mechanical and thermal sensory patterns in children with SCD. Children ages 10 to 17 years (n = 48; mean 13.7 ± 2.0 y; 22 females) participated in quantitative sensory testing (QST) procedures and completed a ... Read more >>

J Pediatr Hematol Oncol (Journal of pediatric hematology/oncology)
[2015, 37(3):185-189]

Cited: 21 times

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Pain assessment using the adolescent pediatric pain tool: a systematic review.

Ananda Maria Fernandes, Catarina De Campos, Luis Batalha, Ana Perdigão, Eufemia Jacob,

BACKGROUND:The Adolescent Pediatric Pain Tool (APPT) is a multidimensional pain assessment tool designed to assess pain location (body outline diagram), intensity (word graphic rating scale) and quality (list of pain descriptors) in hospitalized children eight to 17 years of age. OBJECTIVES:To identify the age range, health conditions, settings and purpose ... Read more >>

Pain Res Manag (Pain research & management)
[2014, 19(4):212-218]

Cited: 6 times

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Pain, coping, and sleep in children and adolescents with sickle cell disease.

Joyce Kelly Graves, Eufemia Jacob,

PURPOSE:The study examined the relationships among pain, pain coping, and sleep, and assessed factors (age, gender, frequency, and intensity of pain) that affect pain, coping, and sleep in children with sickle cell disease (SCD). METHODS:Participants (66) were 39 children (M = 11.5 years) and 27 adolescents (M = 15.5 years) ... Read more >>

J Child Adolesc Psychiatr Nurs (Journal of child and adolescent psychiatric nursing : official publication of the Association of Child and Adolescent Psychiatric Nurses, Inc)
[2014, 27(3):109-120]

Cited: 7 times

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Cultural adaptation to Brazil of the questionnaire Costs of caring for children with cancer.

Raquel Pan, Amanda Rossi Marques, Bruna Domingos dos Santos, Eufemia Jacob, Claudia Benedita dos Santos, Lucila Castanheira Nascimento,

OBJECTIVE:to present the cultural adaptation of the questionnaire Costs of caring for children with cancer, offering a valid and reliable tool to assess the economic repercussions of childhood cancer for Brazilian families. METHOD:it is a methodological research with a cross-sectional design. The methodological framework to validate the questionnaire was a ... Read more >>

Rev Lat Am Enfermagem (Revista latino-americana de enfermagem)
[2014, 22(4):591-597]

Cited: 1 time

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Structural brain alterations in children an average of 5 years after surgery and chemotherapy for brain tumors.

Mary Baron Nelson, Paul M Macey, Ronald M Harper, Eufemia Jacob, Sunita K Patel, Jonathan L Finlay, Marvin D Nelson, Peggy Compton,

Young children with brain tumors are often treated with high-dose chemotherapy after surgery to avoid brain tissue injury associated with irradiation. The effects of systemic chemotherapy on healthy brain tissue in this population, however, are unclear. Our objective was to compare gray and white matter integrity using MRI procedures in ... Read more >>

J Neurooncol (Journal of neuro-oncology)
[2014, 119(2):317-326]

Cited: 3 times

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Psychological aspects and hospitalization for pain crises in youth with sickle-cell disease.

Jennie C I Tsao, Eufemia Jacob, Laura C Seidman, Mary A Lewis, Lonnie K Zeltzer,

Sickle-cell disease is a genetic disorder characterized by severe pain episodes or "vaso-occlusive crises" that may require hospitalization. This study examined the associations among emotion regulation, somatization, positive and negative affect, and hospitalizations for pain crises in youth with sickle-cell disease. Multivariate analyses indicated that emotional suppression and somatization were ... Read more >>

J Health Psychol (Journal of health psychology)
[2014, 19(3):407-416]

Cited: 9 times

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Central nervous system injury and neurobiobehavioral function in children with brain tumors: a review of the literature.

Mary Baron Nelson, Peggy Compton, Sunita K Patel, Eufemia Jacob, Ronald Harper,

Children with brain tumors present a complex set of factors when considering treatment decisions, including type and location of tumor and age of the child. Two-thirds of children will survive, but historically have had poorer neurocognitive and quality-of-life outcomes when compared with survivors of other childhood cancers. Delaying or forgoing ... Read more >>

Cancer Nurs (Cancer nursing)
[2013, 36(2):E31-47]

Cited: 4 times

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